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Monday, January 22, 2001
And.......
Finally......
by the grace of God........
This evening, at 7:15 pm, Chris, Jenny and Ellie went home .......
There are no more overnight hospital stays planned.......
Now, life begins with the HeartMate at home....... Remember, Jenny must always be hooked up to some power source (a power base unit or batteries) in order to operate the HeartMate..........
Tomorrow, we'll have a summary of Jenny's entire trial...... until then......
Jenny's life, going forward, will be very difficult......
Life is hard.........
Sunday, January 21, 2001
Well, the plan is that tonight will be Jenny's last night at St. Vincent's, and that some time tomorrow, she will be released to go home........hopefully, not to return.......
However, we still don't have test results on whether Jenny's heart is recovering on its own, or whether, in the future, she will need a donor heart........Both issues would definately result in a return to St. Vincents, and the heart donor procedure would require an extended stay.........
Sunday was a very uneventful day, praise God........ Just packing, relaxing and planning for the future.......
Last night, Jenny returned to the CRU to say goodbye to a group of wonderful people who with her day and night, assuring Jenny would make it through....... It was a tearful reunion - - and the nurses continued to be amazed at Jenny's outstanding progress......
Jenny also chatted with the "powers that be" on the second floor to see if Jack Burns could get Jenny's room after Jenny left......Jacks's been through such a tough and extended time that he deserves the bigger room - - - and he'll need it with the visitors he can expect !
How about Jenny thinking of Mr. Burns in the midst of her own difficulties? Praise only God for such a wonderful and thoughtful gesture .........
Jamie and Jenny plan to watch the Golden Globes tonight in the hospital - - - and they have all the right snacks ready for the event....Pretzels, golden fishies, M&M's, bottled water - - - I'm told - - the essentials.......
Now, I have no idea what the Golden Globes are , but I don't feel like my life is incomplete without such knowledge..... Needless to say, won't be tuning in - - - But - - it should be a great time for Jenny and Jamie to hangout !
Big party last night with some "hospital" friends of Chris and Jenny's........ A wonderful farewell from some new found friends.....Of course, they won't share any details of the party with me as they say the website may incriminate them......... Now, I'm even more curious............A certain individual, who will go unnamed (but his name rhymes with "Benny") has kept his distance from this writer for some time....... Wonder why???? Could it be the Martin House shower fiasco ?
Jenny plans to take a walk tonight, have some dinner and then prepare to enjoy some time with her sister Jamie, husband Chris and little baby Ellie.........
I doubt Jenny will sleep much tonight with the anticipation of going home tomorrow !!!!
This has been 50 days I'll never forget - - to see the gracious and merciful hand of God in every aspect of this trial, for the ability to say "thank you" to God for another day of life, and for the blessed gift of seeing my sister's smile again and to listen to her quick wit and enjoy her wonderful company! For all the aforementioned, I thank God through tears........
Stay tuned tomorrow, as we plan it to be the last daily update for Jenny on this website.........Perhaps, we will follow with a summary of the entire ordeal......, but we'll see.........it's Chris and Jenny's call........
God bless each and everyone of you and your families !
Peace,
Tim
Saturday, January 20, 2001
.....and so the verse from yesterday holds true - - - "weeping may remain for a night, but rejoicing comes in the morning".......
the verse is literal as well as eternal in nature........that is, it has a current application ......and an eternal application - we will rejoice forever in eternity with Jesus.....
One other verse that cannot be applied currently, as evidenced by Jenny's trial, but only to eternity, is this one:
"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." Revelation 21:4
It's amazing what we have to look forward to - - AND -- what we do here on earth has an effect on how we will someday live in heaven..........if interested, see a paper on this topic at The Eternal Perspective.........
Jenny applied "weeping may remain for a night, but rejoicing comes in the morning" currently, to her feelings today:
She called this morning saying she was having a better day adapting to her new surroundings.........Jenny said, "the sun came up today........and so did I".......
no "routine" is easy after missing almost 50 days ....... and.....after being in the routine for 8 months.........just imagine the difficulty adjusting.......
Since there was no food in the house anywhere - - "young" Don, one of three neighbors named Don, went to Burger King and bought breakfast for the Walkers.......A wonderful gesture........and he was proud to do it since he received the title "young" Don.......as opposed to "old Don" and "new Don", the other two neighbors........
This morning was better -- -- -- partly because Jenny celebrated Christmas !!!!
Yea - she opened some gifts in the hospital on Christmas day and recognized them at that time -- but quickly forgot about them later due to the sedation medicine....When she arrived home, she reopened the boxes again as if she'd never seen these gifts before........ What a great surprise !!!
Undoubtedly, the biggest surprise was her 5 year anniversary present from Chris on December 26...... For the first time in memory, she saw the beautiful tennis bracelet Chris had given to her......."gorgeous" was Jenny's response - - and you could hear the tears in her voice.......
This morning, wearing old pajamas and a new diamond tennis bracelet brightened Jenny's early morning hours.....
So - here's the tough lesson - - learning to be content no matter what the Lord allows in our lives.......
and we need to respond as Paul did - - and he could only respond this way consistently because of the power of Christ in his life:
"I am not saying this because I am in need, for I have learned to be content whatever the circumstances. I know what it is to be in need, and I know what it is to have plenty. I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want. I can do everything through him who gives me strength." Philippians 4:11-13
Not an easy task..........
Jenny gets a chance to deal with even more difficult circumstances because at 3 pm today she is due back at her hospital home.........having to say goodbye to Ellie again will be another source of heartbreak.......
Prior to arriving at the hospital, the Walkers stopped by Charlie and Barney's for some chili take out........perhaps, this may have been helpful news earlier in the day - - to evening visitors.......
After settling into her room at the hospital, Jenny made a round of visits to new friends in the hospital..... In particular, Chris' grandfather, Al Rust, who is on the 5th floor, with internal complications to his head and Jack Burns, our friend from CRU (Cardiac Recovery Unit)........Jack's been moved to the 2nd floor, same as Jenny's.....Praise God !
We have become friends with Mary Dee Burns, Jack's wife........Mary Dee is one of the finest, kindest, most caring and loving persons our family has ever met.......What wonderful news that Jack is improving and down on floor 2 !!! My dad called Mary Dee, "the salt of the earth"......which is certainly appropriate given her actions and words......
This evening, Dr. Hatcher visited with an updated "Hatcher harness" (aka "h-squared") to keep Jenny's driveline on the HeartMate more secure........Reports so far, is that this version of the "h-squared" is excellent and working very well......What a kind act by Dr. Hatcher, and, what a good friend and teacher he's been to Jenny.......
Also, this evening, Jenny was taken of some "telly's", which are monitors on Jenny's body that record her vital statistics on screens that appear throughout the 2nd floor hallways.......That way, a nurse walking the halls can see all the patients "vitals" in all the 2nd floor rooms, without having to visit each patient.........In fact, there are antennas throughout the 2nd floor, so if the patients leave their rooms, their vitals are picked up by the antennas and displayed on the same screen.......pretty cool.....
Coming off the "tellys" is good news - - followed by some more good news - -
The good news is Jenny is planning on being released from the hospital on Monday, January 22, 2001......To understand the enormity of this statement, you would have to go to the bottom of this page, December 7, 2000, and read about all the events that took place in the last month and a half.....
And I write only about the events I have witnessed.....
I wish I had the ability to peel back the layer that separates the physical world we live in and, for once, see the activities of the spiritual world ...... What if we could write about all the events related to Jenny's situation that took place in the spiritual world that bought us to today ??? I think we would be amazed to see God's holy and loving hand in each and every event since December 7, 2000.......and since God never wastes a sorrow, wouldn't it be great to write about the reason behind all these events? and, perhaps, all the lives that have been touched through this trial?
Today, we can only witness a few of the spiritual events in Jenny's situation - - and, one in particular, I want to write about now.......
The reaction of friends, family and so many other people to Jenny's trial......
From the daily prayers, phone calls, e-mails, gifts, dinners, prayer services all over the USA, cards from everywhere, kind comments to our entire families each and every day, acts and words of encouragement and concern, entire churches praying and even the prayers of a certain football team in South Bend........ Thank you........from the bottom of the entire Walker and Doyle family's hearts.....
We've seen bible verses acted out by loving people:
I could go on, but I won't, as our appreciation for seeing bible verses being lived out is probably clear...........
but, please, allow me one more story......
".......One of the teachers of the law came and heard them debating. Noticing that Jesus had given them a good answer, he asked him, "Of all the commandments, which is the most important?" "The most important one," answered Jesus, "is this: `Hear, O Israel, the Lord our God, the Lord is one. Love the Lord your God with all your heart and with all your soul and with all your mind and with all your strength.' The second is this: `Love your neighbor as yourself.' There is no commandment greater than these." Mark 12:28-31
We thank you for showing Jenny and our families in your words, actions and prayers , the meaning of "Love your neighbor as yourself."
Everyone one of us has been gifted differently by God, but everyone has the ability to pray - - and we ask for your continued prayers for Chris, Jenny and Ellie as they adjust to their new life together......Those of you who have been gifted financially, and would like to help us cover some of the expected, and unexpected, estimated annual expenses below, we would appreciate it!:
| item | estimated annual expense |
| nanny/home healthcare worker | 26,000 |
| prescriptions | 3,000 |
| medical bills | 2,000 |
| rewiring home for equipment | 2,000 |
| equipment | 1,000 |
| clothing | 1,000 |
| unexpected | 1,000 |
| total | 36,000 |
Please - - feel no obligation to help financially, but please help in prayer.......
Finally, I leave you with a prayer:
Lord,
Be with us to guide us,
Within us to strengthen us,
Without us to protect us,
Above us to raise us,
Beneath us to uphold us,
Before us to lead us,
Behind us to guard us,
Ever about us,
This day and evermore..........
Friday, January 19, 2001
Last night's "heart rate" test went flawlessly, as there was no irregular heartbeat throughout the night.......
Praise God for more wonderful news !
Excitement mounted as Jenny prepared for her 24 hour "furlough"........there was packing and cleaning - - just like preparing for a vacation - - - except normally, vacations are taken away from home.......
The day even got better when my good friend from college, Scott Hopkins (aka Hoppy), dropped by to visit Jenny....and he was bearing gifts.......
He gave Jenny an Andy Griffith board game and a very nice framed and signed picture of that fearless deputy, Barney "fast-gun" Fife.......
also known as : Foxy Fife : Tiger Fife : Intrepid Barney Fife : Fearless Fife : Barney the Beast : Fife the Fierce : Crazy-Gun Barney : Phantom Fife : Rifle Fife : Wild Bill Fife : and Bernie........
(no - I didn't know all these - - but Hoppy did...)
An appropriate gift for the mother of Ellie Walker.......
C'mon......don't you remember????? Ellie Walker was the famous Mayberry pharmacist!
Jenny smartly passed on therapy this morning, knowing she would get enough of a workout moving home - - -
The minutes passed like hours.......but finally, the time came ..........and at 2:06 pm, Jenny called saying she was signing her "release papers" - - - well, for at least 24 hours, anyway.......
By 3:00 pm, Chris and Jenny joined Ellie at home.........
What a relief, right?
Well, if you replied positively, you have never been a mother.........
Frustration began right away, as Ellie apparently began to react to some new teeth that were coming in......
For comfort, Ellie turned to Chris........
and that hurt Jenny !!!
Jenny had basically been the only one Ellie would respond to in time of need, which was constantly, for 7 months, and Jenny always provided the comfort..........and Ellie just loved it !
Getting around the house was annoying......and slow........nothing worked right.............one frustration after another......
Jenny's world seemed to be running so much faster than she ever remembered.........and she couldn't keep up.......and it was depressing.......
and sooo hard..........Jenny thought, "this is too much and I can't contribute at all - - I feel like a burden......"
.......and her four brothers and sisters in wheelchairs seemed to say, "so - you now feel how we feel sometimes......I'm so sorry.....let us help....."
But Jamie did !!!
Jamie called Jenny - - and after hearing Jenny's voice, came over to be with her........to provide comfort and a helping hand with Ellie, who had been crying all afternoon and evening......
The Walker girls were having a tough day........and night.......
but like all others, this day - - God's wonderful gift - - came to an end..........
and, we can all reflect on the course of our very difficult day, and how we forgot to thank God for his grace and mercy......
I remind each of you of your value - - click here for a quick story
and how we sometimes never know how God can use us just as we are - - to glorify Him - click here for a quick story
And that tomorrow is a new day - - - - and that "weeping may remain for a night, but rejoicing comes in the morning" (Psalm 30).......and "His compassions are new every morning - - Great is His Faithfulness !! (Lamentations 3)
I can't wait to see how God will use Jenny and our family tomorrow - - to glorify Him.........
Please join me.........
Thursday, January 18, 2001
John, Marian, Patty, Carolyn, Marty are all neighbors of Chris and Jenny, and they were all trained on how to handpump the HeartMate in case of an emergency....
During their training, Chris and Jenny stopped by to thank the "Windcombe" (sp?) group in person.......
What a thoughtful gesture to give up a day for a friend......Thank you so much for your kindness !
Now --- for some tough news and then some possibly good news - -
First - - the tough news:
In the past few days, the monitors on Jenny's heart have detected an irregular heartbeat.......
Last night, Jenny's heart beat irregularly twice, and the night before it did the same thing once........It seems her heart has beat 3 times quickly in a row, and then goes back to normal.......This is what happened each of the three times the event took place....Jenny, of course, was unaware this was taking place........
The doctors are interested in knowing the cause, so they have recommended more testing.......
Tonight, Jenny's heart will be monitored all night to see if there's a problem......So, there's more equipment in the room to perform this all night procedure......
If the irregular heartbeat is detected again, the doctors may have to install a defibrillator (a "defib") on Jenny's heart......
Research tells me that defibrillation is a process in which an electronic device, called an automated external defibrillator or A.E.D., helps reestablish normal contraction rhythms in a heart that's not beating properly. It does this by delivering an electric shock to the heart.
Possibly -- another surgery............
But this would only be an hour surgery and Jenny would not be totally under sedation.......
According to the doctors, this is not uncommon for HeartMate recipients..... In fact, Jenny was told that all the HeartMate recipients pretty much have irregular heartbeats.......and have a defib installed........
I'm told the defib is like a little chip, sort of like a pacemaker, and would be installed as long as Jenny has the HeartMate.......
Now - - the possibly good news:
If all goes well with the irregular heart beat test tonight, Jenny will have a 24 hour home furlough on Friday.......
the 24 hour "furlough" clock starts ticking the minute she leaves the hospital - - -so, for example, if she leaves at 2 pm on Friday, she won't have to return to the hospital until 2 pm on Saturday.......
What wonderful news for Jenny and the family ! She's pumped !!!
If that all goes well, then Monday will be her last day in the hospital- - - day 47........
Jenny is so excited with that news that her vital signs have changed........The nurses check these "vitals" throughout the day, and Jenny's excitement is affecting her numbers..........She can't help it !!!!
However, if the doctor's do install a "defib" this weekend, Jenny will not leave the hospital on Monday.......
She will have to stay an extra 48 hours, at least......and for 24 hours, she will not be able to get out of bed at all........
It was visit your favorite priests day at Jenny's room in th hospital - -
Today, Father Marty, priest at St. Pius school and Father Pat Doyle (our uncle), the priest at St. Joan of Arc, visited Jenny......Jenny was out walking the halls when Father Pat visited, so he just enjoyed all the photos of Ellie in the room and wrote a nice note, followed by a phone call,,,,,,,,,
She really enjoyed her discussion with Father Marty............
In PT today, Jenny proclaimed, "I worked my fanny off...." The therapists concurred, using different language of course...
Jenny was concerned because the therapist was writing alot of information on Jenny's charts......Jenny sneaked a peek at the book and hesitantly asked an assistant (while she continued to scan the charts),
"Am I allowed to see this?"
... Jenny continued reviewing the writings - - - -sort of listening to - but not looking at the person replying.........
"Um, not really", he replied......
"Sorry" was her reply - - -but only after a last quick peek.........
Baby John !!!
Wednesday, January 17, 2001
Some folks have not been able to see the last couple of days write-ups because their web browsers couldn't handle the pictures.........Here's what you do if you have that problem - - - click the "Refresh" button in the menu bar above.......In fact, there's a neat picture on the first page - - so push the "Back" button and "Refresh" button to see a cute picture of Jenny and Ellie on the opening page....
Ready for updates? - -
From 12 noon to 4 pm, Chris, Jenny and Ellie spent a simple day together at home - - for the first time in 40 + days.....
Jenny and Ellie played together for hours, and Chris commented that the effect on Ellie was amazing - - - "I haven't seen Ellie this happy in so many days !", Chris said........
Ellie was laughing all day, showing off, rolling over for mom, waving bye-bye, opening Christmas gifts .......making sure Jenny knew all the latest tricks she was now able to do........a very fine performance, indeed !
Jenny fulfilled a month long dream of taking a nap in her own bed - - - and it was wonderful !!! Even Ellie helped out by taking a nap at the same time as Jenny.......
Spending a few hours at home was so therapeutic for Jenny...... She needed to see that everything would and could be fine as she resumed her role as wife and mother at home.......
Everything seemed so new to her - - and fresh - - it's a chance to start over -- but now with a totally new outlook and appreciation for life - - an opportunity to slow down and enjoy the truly simple aspects of life..... What we've learned is that those simple aspects of life are also the most glorious.......
Leaving home to return to the hospital made Jenny cry...... She said to Chris, "call the hospital, tell them I'm ok and that I'm staying here......"
It didn't really help that Ellie was at the front door with Jackie, the nanny, waving bye-bye to her mommy........
Heart wrenching.....
But it was a great day !!!! and a time for rejoicing........
From the bible on rejoicing:
"Rejoice in the Lord always. I will say it again: Rejoice! Let your gentleness be evident to all. The Lord is near. Do not be anxious (or worry) about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God." Philippians 4:4-6
This one bible verse says alot - -
Will you give Him the glory, by rejoicing in Him, in the good and bad times?
Let me give you an example of rejoicing in God even in the difficult times..........
Remember, I'm not saying rejoice in the sickness or condition - - there is no love in that statement......
I'm saying rejoice in God, no matter what the circumstance:
My dear friend Todd Leyden has a 13 yr. old son named Payton who is fighting for his life at Riley's Children's hospital..... Payton has the following conditions:
Can Todd rejoice in God in this situation??? Could you or I???
Here is Todd's prayer he wrote just yesterday:
"Father, my heart aches to see my son suffer so, yet your grace and mercy is all that we need. It is our honor and privilege to raise Payton to be a man, one that will reflect the glory of your light to this world. We know not why this time and place is before us, our soul rests in your loving arms. To see the prayers and adoration to you Father, illuminates your love that flows out to this world. Some may question the need to honor and obey our creator God, but for you we owe our earthly and eternal life. You gave your son to take away the sins of the world, I can now feel the anguish of the preciousness of life. O' Lord I ask that Payton live another day, to heal and recover through your glory and power. We do not know the path of our earthly life, but to accept, serve and bow down before your heavenly throne. Take my concerns, questions and bring peace to my heart, for you alone are sufficient for my every need."
Please pray for Payton and the entire Leyden family..........Todd, Robin, Payton, Blake and Chase.....
Tuesday, January 16, 2001
"Tomorrow, tomorrow, I'm going home, tomorrow.......its' only a day away......." Jenny attempted to sing that song,
...key word - attempted......
Jenny's 4 hour furlough is scheduled for Wednesday (12 noon - 4 pm)! No word as of today whether the doctors will be performing an echocardiogram test on Wed. instead of the furlough or in addition to........We shall see.......
In PT today, Jenny rode the NewStep machine for about 14 minutes...... An all time high !! She also worked out very hard on all her other procedures, prompting continued praise from the therapists !
On a sadder note, Chris' grandfather, Al Rust was admitted to the Emergency Room of St. Vincent's hospital today - having some internal complications with his head.......Please pray for him.......Chris has lost 3 of his other grandparents while they were in St. Vincent's hospital, so this is especially difficult for Chris - - again, we've seen the power of prayer in action, so please continue.......
Time for a family photo - - of Chris, Jenny and baby Ellie taken in Jenny's room at St. Vincent's hospital !!!!! (if you don't see a picture - hit your "Refresh" button
One more ????? Why not ????
Click below to see some more photos of Chris, Jenny and
Ellie from the hospital !!
Family photos !!!! - here's a list of about 20 more photos !!!!
Lastly, I want to share with all of you one of the most beautiful, humbling and solemn presentations I have ever seen (Thanks Tom Olinger !) - -
Now, don't miss this !!!! It's wonderful and I strongly encourage you to take 10 minutes and check it out !!!!!
What this has to say is so powerful that it bought tears to my eyes........
Its a "flash" presentation that runs automatically on your computer - - click the link below :
http://www.fathersloveletter.com/fllpreview.swf
Stay tuned the next couple of days because everything's going to get very, very exciting !!!!! See ya tomorrow !!!!
Monday, January 15, 2001
Hello
and a "belated Merry Christmas" from Ellie !!!!
Usually, it takes a long time for a 7 month old to pose for a picture - - but this - - and all the other pictures of Ellie that day were successful on the first attempt....... What a ham Ellie is - - - dare I say it ??? - - Just like her mom !
Many weeks ago, when Jenny was coming out of her drug induced coma, we asked Jenny if she could see this 8 1/2 x 11 "Santa picture" of Ellie that was on the bulletin board across the room.......
We'd say, "squeeze my hand if you can see the picture of Ellie in her Santa hat"
- - and Jenny would squeeze our hands so hard it almost hurt............
Although Jenny never realized it, Ellie was the one word that made her react with a smile during her most difficult of times.......Jenny couldn't tell us about the extreme pain she was in because of the ventilator in her mouth - - -
but you could easily see the pain and frustration on Jenny's face.......
One item that helped Jenny through this extremely tough time was the picture at left of her baby Ellie.........
For at least a few moments - - the amazing pain was replaced with an overflowing love for her baby.........
What a beautiful gift from God in the midst of a terrible trial !!!!
But how about the update today ? Well, Great news !!!!
Hopefully, Jenny and Chris will be going home for a 4 hour "furlough" on Wednesday !!!!!
Here's the proposed gradual release schedule: (subject to change)
Wednesday - - she goes to lunch and home with Chris for about 4 hours; then returns to the hospital....
Thursday - - she can go home for a total of 6 hours; then returns to the hospital...(however, this step may not be taken)
Friday - - she goes home for a 24 hour period; then returns to the hospital...
Saturday - - she goes home to be with Chris and Ellie for good !!!
Jenny's plans????
"I just want to go home, sit on my own couch and hold my baby ! I just can't wait !!!!!"
The genesis of this release program was the passing of a "HeartMate" test by everyone attending the classes this last week: Chris, Jenny, Jamie, Jackie (nanny) and Dad.........If everyone didn't pass the test, Jenny wouldn't get to go home...... There was definitely some pressure in passing ! And.......everyone came through with flying colors !!! .......Well, everyone passed anyway.....
One small incident took place worth mentioning - -
Jamie had a question for one of the coordinators teaching the course, so the coordinator took Jamie and some HeartMate test equipment to the side..... Jamie asked the coordinator to create the alarm on the HeartMate unit so she could familiarize herself with a "game day" situation......During this time, the other coordinator, Jenny, Jackie and dad were moving on to the next topic......For some reason, Jenny didn't notice that Jamie and the previous coordinator stepped away........everyone else in the group was quite aware........
Naturally, Jamie's test HeartMate system alarm went off - - - and - - -Jenny was startled !!!!!!
What scared her more was that no one was doing anything to address the alarm !!!!! She was sure it was the HeartMate alarm for the HeartMate inside her own body !!!!!
Jenny said, "My eyes got as big as half dollars" and I said, "What is that? What is that? Do something !!!!!!!"
Everybody just looked at Jenny - - - and then to Jamie - - - who then apologized for alarming Jenny.......
A good chuckle was had by all - - - at Jenny's expense......
Thanks to all your prayers on addressing the tension on Jenny's workout schedule........ Yesterday, physical therapy was outstanding !!!!
Jenny actually walked down to physical therapy (PT) by herself, and afterwards walked back to her room.......During PT, Jenny worked out with 3 lb. weights on her legs for extra conditioning.......The therapists were extremely pleased with Jenny's progress and dedication to her workouts !
Dr. Hatcher visited again today to discuss some minor adjustments to the Hatcher Harness......Jenny affectionately refers to him as Dr. H working on the "H squared" (aka Hatcher Harness).....
Today, Chris went to a place called the Orvis fly fishing shop in the 96th and Keystone area..........
You may be asking yourself, "and this is important because.......?????"...
Well, the women's fly fishing vests that they sell at Orvis have many pockets all over them........These pockets will be very useful in holding the HeartMate battery packs and control unit in place........ Jenny will have a few vests to hold all this equipment in place to make it easier to walk around.......so the batteries stop colliding with the HeartMate driveline.........and less tempting for "little santa" Ellie to pull on.........
Nice job Chris - - - who would've thought your love for fishing could have helped out this situation?
Dr. Allen visited today ---
He discussed something called "the bridge to recovery" program....... This is the program where Jenny would not receive a donor heart because her heart is recovering on its own......... Right now, Jenny's heart recovery has not been properly tested, so we don't know if her heart is recovering on its own...... Dr. Allen mentioned performing the echocardiogram test on Wednesday, which may thwart (I love that word....) Jenny's plans on going home on Wednesday....
At this point, Dr. Allen has no idea whether Jenny's heart will recover on its own, much less, how long it would last thereafter....... 6 months? 1 year? 5 years? We just don't know at this point..........More to come.......
Lastly, I witnessed the daily procedure to change Jenny's dressing on her HeartMate driveline........ The 30 minute routine performed by Chris is simply amazing because of the exactness and unbelievable steps to prevent infection......It is a very precise procedure and protocol is key........ It's going to be a difficult step to perform daily, but like Chris and Jenny said, during that time they can talk about important things that happened that day...... They can reserve that time everyday for just the 2 of them to reflect on this entire ordeal - - - -and give thanks to God for his blessing of life.......
Sunday, January 14, 2001
Please push your "Refresh" button above to see most current info and pictures !
This morning the Walker family (Chris, Jenny and Ellie) took a wheelchair ride virtually throughout the entire hospital....... It was a long ride and, of course, Ellie was the hit at all the nurses stations !!!
They visited Jenny's old stomping grounds - - the Cardiac Recovery Unit - - and visited a friend of all of ours - - Mary Dee Burns....... Her husband, Jack, is also a HeartMate recipient...... Unfortunately, some infections have affected Jack and we need to keep him in our prayers....... Mary Dee is one of the finest persons our family has ever met ; she's such an encourager and such a blessing to her husband Jack......
Jenny walked 900 feet with her walker this morning - - - and about 800 feet more early this evening - by pushing Ellie in her stroller.......
The last 2 days, Jenny has attached the HeartMate to her battery power alot of the time.......Chris and Jenny are trying to determine how long the batteries actually last..........They're supposed to last 6 hrs, but if they're anything like computer batteries - - expect about 45 minutes.........We'll see..............
Big thanks to Dallas (Comegy's) for being with Jenny today - - and Katie Kelly yesterday - - they've been great friends since high school and Ellie just loves them both very much !!!
In fact, Ellie performed another first today by standing up in her crib......Of course, Chris had to stand her up, but she held on - - - and then - - - once she realized what she was doing --- started laughing uncontrollably....... and, in no time..... fell right on her little butt.........
The other day, I mentioned that Erin's 7th grade class made cards for Jenny, and I wanted to share a few of the cards with all of you - - - so here goes !!!
Jenny,
Hi.. What's up? Well I am bummed out ! It makes me sad that you aren't out of the hospital yet... I can't wait till Christmas...I'll get Ellie a present! A cute outfit and stuff..... Chris and Ellie are doing good - don't worry.... I can't wait to see you and talk with you.
Love Always,
Kerry Kirk
Dear Jenny,
We are going to pray for you so you can love your little kid when you get better - - so get well soon.
Love,
Matt
Jenny,
Hey! We are all praying for you. God is with you and is making you better right at this very second. I wish I could come and see you! Anyway, we all miss you here! Here is a passage from the bible - "Happy are those who reject the advice of evil people." Psalm 1:1
God will help you through this and so will your family. Keep having faith.
Love always,
Jenna
Jenny,
Hey girl ! I am so proud of you ! You just keep hanging in there ! You're doing great and going to do great! You just keep on keeping your great attitude!
Your friend,
Megan Bower
Jenny,
(on the same card)
Hey ! It's me - Megan Bower...Remember?? You are in my prayers all the time... Keep having faith and never give up ! Remember, God is always there to talk to ! Here's a little prayer you can say if you need someone to talk to:
God -
I pray for all those who are in need of you.. I thank you for everything you have done for me and keeping me safe! Amen!
Love always, You're never forgotten,
Megan Bower
Jenny,
Our prayers are with you. I hope your son is ok. I really hope you have a great Christmas or I hope you get out for Christmas... I am one of Erin's friends....one of her guy friends....Make sure you keep her doing the right things....Well, remember, God is with you and pray.
Love,
Jimmy Roesinger
Dear Jenny,
We are all praying for you. I hope you have a great Christmas. Erin has been telling us what a wonderful person you are. I will keep you in my prayers.....
"Give thanks to the Lord, because He is good; His love is eternal" Psalm 107:1
Get well soon,
John Miller
Dear Jenny,
Hey, what's up?
Erin has been talking about you (good thing)...
I really don't have anything to say so I hope you get well soon......and Merry Christmas from our room to yours.....
Unsigned
Hey Jenny,
I have had so many good times with you.. It is hard to believe you need a new heart.... Remember when we all jammed into your car before the carnival? I walked with Kerry, but you guys looked histarikal !
Love always,
Katie Johnstone
Faith can move mountains...... from the bible
God only bestows challenges apon us that we have the strength to endure.....Even if it strains every once of strength from us......from the bible - - (typed as the card read....)
from:
Carolyn
Jenny,
I hope everything goes well. Whenever I was over at Erin's and you were there, you made everyone happy - especially me..... You are such a happy person...Keep smiling.... I remember you came to our V-Ball practice and helped us out.. I had a great time.... You are in my families prayers...My mom really liked you....When I told her about this, she was so sad.....We just hope you all get better and feel better too !
Love,
Kim S.
Aunt Jenny,
Well, I would ask "how are you", but, ya know.... You wouldn't believe how many people are thinking of you and praying for you! I know this is hard for you, but me too, because we are so close.. I love you more than you'll ever know...
Love,
Erin
Dear Jenny,
My family and I are all praying for you, and your family...Let us know if we can do anything for you.... When you can, give Ellie a kiss for me.
Love,
Elisa Rudolph (Erin's friend)
Dear Jenny,
I am praying for you. I hope you get well soon. I know that God will be with you always.
From,
Nick Pasotti
A story from Mack today - - -
3 nurses, 2 doctors, and a person changing the sheets all entered Jenny's room this afternoon to the same question from Jenny - -
"Can you put me on the release list?" ........Jenny smiled wide, hoping to win some sympathy.....
They laughed - - -Jenny frowned - -
Jenny's theory is, "maybe one will cave into my pathetic pleas" -- -- it bought back memories of requests for ice chips......
Being added to a release list will only happen after Jenny gains her strength back.......Chris feels this will happen only after increased walking, and Jenny says walking totally fatigues her......... This is the source of a small amount of stress and worry.........
As Chris and Jenny approach 40 days in the hospital, we need to pray for their patience with regard to this matter and for it not to be a source of worry.......
Pray specifically for the development of a walking and workout program that will meet both Chris's and Jenny's requirements by being challenging while not overdoing it - - - and eliminate any tension this issue causes........
On worry???? - - -Check out a paper on this website entitled - - Why Worry Now?
Saturday, January 13, 2001
The hosptial staff moved Jenny into a much, much larger room this afternoon to better handle all of Jenny's visitors -- which are mostly family .......
It's a wonderful room that includes a number of chairs, a couch, Jenny's bed, and alot more area to accomodate visitors, Ellie's crib and family member's wheelchairs.......
Another kind and generous act on the part of the hospital staff !
It's pretty quiet on the weekends in the hospital - - and Jenny spent most of the day playing with Ellie, resting and trying to figure out which day she would be going home next week.........
There was no physical therapy today and Jenny was hoping that since she switched rooms, the therapists wouldn't be able to find her on Monday morning !
Jenny's brother Mack shared a hospital lunch with Jenny today.....and he actually enjoyed it ! He reportedly was asked to stay by the nurses to help others respond the same way he did to the food............
I was leaving the hospital this evening and someone stopped me as I was entering my van - - his name was Jeff Hiller and he attends College Park church as I do......
Jeff has two critically ill daughters, I believe their ages are 5 (Ivie) and 3 (Joli)...........
I chatted with Jeff and it was apparent from his words and reaction that he is a man full of peace and joy..... He shared this verse with me as one that has helped him through his tremendous trials:
"Ask and you will receive, and your joy will be complete." John 16:24b
After praying, Jeff was off to McDonald's to meet his daughters request for some french fries......
A number of verses come to mind when I think of the difficult times that Jenny endures in the hospital - - she just struggles because she simply wants to raise her baby at home.........Just like all the other parents are able to do ......
Sometimes, it's difficult to maintain a positive attitude all the time, when everything seems to be out of her control.......Despite this, God expects us to react with joy in the midst of our trials......
"Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything."
God expects this from us because He know what we do not - - - the future - - - in eternity......
You see, everyone one of us will live forever, the question is where???? In heaven or hell.......
His Word says about eternity (heaven)- - - "No eye has seen, no ear has heard, no mind has conceived what God has prepared for those who love him"........
Also, God does not seem to prepare us for eternal life in heaven by a current life of comfort - - -for Christian character does not get strong by a life of success.......
His preparation for eternity in heaven requires the following down here on earth:
In the midst of this - - we are commanded to live joyfully...........and this is the challenge to all of us - - -even if we are stuck in a hospital bed with a HeartMate pumping our heart for us to live !
To see notes on living with JOY, click here
Friday, January 12, 2001
For the first time in 37 days - - - Jenny went outside !!!
Enjoying the fresh air is such a pleasure since the extremely dry air in the hospital continues to result in a bloody nose for Jenny......... After one day, the dry air even conquered a new humidifier purchased for Jenny's room......
Also, Ms. Jenny Walker "retired" the walker she was using for assistance and replaced it with a walking cane........ Another "big step" in the right direction !!
Jenny said, "I've changed my name from Jenny Walker to Jenny Cane !"
The last step in Jenny returning home is being able to walk again without any assistance !!!!!!
So - - - please pray for Jenny to have the strength and encouragement from friends and family to continue practice walking !!!!
Today, a "Kodak moment" was missed when Ellie visited - - and fell asleep on top of Jenny in the hospital bed for about 20 minutes...... One of the nurses defined it as one of the sweetest moments she had ever seen !!!
Another sweet and thoughtful moment occurred later today when Jenny's youngest niece, Katie (9 yrs. old) took care of her little cousin Ellie...... It seems wherever you see Ellie, Katie is sure to be close by - - very close by.......
She just loves spending time with her baby cousin and does a wonderful job of taking care of her!!!!
Way to go Kitzy !!!!!
Regarding the echocardiogram test- - - Jenny's profusionist (who is not a drummer) said the test to see how much, if any, her heart has strengthened will be next Wednesday, January 17, 2001...........Please mark this on your prayer calendar !!
Jenny may be having a problem on her skin as a result of the driveline of the HeartMate.......The skin appears irritated and must be watched very closely in order to prevent any infection of the area......... You wouldn't believe how careful Chris and the nurses are when cleaning, drying, and applying the dressing to the driveline area - - - it takes about 30 minutes per day to perform!!!
Jenny's learned alot while being confined in the hospital for almost 40 days - - - many, many lessons......
One such lesson was having to ask for help when she wasn't able to help herself........
Up to this point, anything Jenny wanted or needed she was pretty much able to do......... Being confined to a hospital bed has changed that significantly......
........and every request Jenny has made has not been met to her total satisfaction.........
It reminded Jenny of the times when she wasn't able to meet the requests of her brothers and sisters in a similar situation - - and it both saddened and humbled her.......
And yet, the lesson could never have been learned unless Jenny was in the position of need........Being in that position opens our eyes for the first time - - due to no fault on anyone's part - - - you just have to experience a real need to truly understand what a real need is......
and there's comfort in learning such a lesson - - - as the Bible tells us:
"Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God." II Cor 1: 3-4
Praise God for always teaching us - - - helping us to be more Christlike in our responses !
Thursday, January 11, 2001
Today has been an uneventful day for Jenny .........a routine has developed - - wake up - eat - to the wheelchair - to therapy - back to bed - eat - rest in the afternoon - and it goes on and on........
Routines wear on real outgoing people like Jenny.........
Today is day 3 of 5 of the transplant coordinator's meeting....
It was a good meeting with a total focus on the "do's and dont's" of the HeartMate........
When I think of "do's and dont's", it takes me back to a place - - - our small downstairs bathroom - - - that barely fit a sink and a commode......but under the sink, our 3 yr. old Jenny kept her little red stool to stand on so she could reach the sink........
The stool under the sink had a little saying on it - - - so I called Jenny and asked her if she remembered what the stool said - - - basically, her first set of "do's and dont's" - -
Jenny immediately repeated the rhyme printed on the stool: (.....memorized from 27 yrs ago !!!)
"This little stool is mine,
I use it all the time,
to reach the things I couldn't,
and lots of things I shouldn't !"
I pray Jenny remember these new HeartMate "do's and dont's" as well as she remembered her first ones !!!!
I'd like everyone to add Payton Leyden to their prayer list.. Payton is the 13 yr. old son of my very dear friend and co-worker Todd Leyden. Payton was admitted to the world renowned Riley's Childrens' Hospital on January 1, 2001 with staph infections throughout his body, staph infections on the heart and kidney failure..... very, very major......
The doctors have said, "There is not a more sick patient in all of Riley's Children's hospital than Payton."
Todd and his wife Robyn have asked that we pray as follows (per his latest email):
Back to Jenny -
There will be no echocardiogram test tomorrow as the doctors have cancelled it......No problems, except attempting to schedule a number of doctors at one place at a time.......
This evening, Jenny, Chris and Ellie took a wheelchair ride around the 2nd floor -- and for some reason, patients, nurses, doctors, visitors - - everyone - - came out of their rooms to greet the family !!!!! Of course, their attention was focused mainly on Ellie.......... but the parents have never taken a stroll where they were more proud to share their baby with everyone !!!!
The second floor was all lit up with smiles !!!! Praise God for the simple pleasures of just taking the baby for a walk.....and for the power and beauty of a baby's smile to brighten the day of everyone who needed it .......
Here's a story of love and concern for an aunt.......
Erin McCalley, Debby's 13 yr. old daughter, wasn't allowed by the family to see Jenny the first 3 weeks that Jenny laid in bed - - basically in a drug induced coma.....
Erin wanted to help out any way she could - but how could she if she couldn't visit?
On her own, without informing anyone of her intentions, Erin walked over a mile to a store - -- - to buy diapers - - - with her own money - -- for Jenny's little baby Ellie......and she walked the mile home.....in the frigid early December weather.....
Later, Erin gave the diapers to Chris saying, "these are for Ellie," - - not once mentioning all she went through to buy them....or that she paid for them with her own money.......
Here's the humbling part - - This is the first Chris and Jenny have heard about this act of unselfish love.....
Later, Erin asked her classmates to make cards for Jenny in order to encourage Jenny during her tougher times.....
The next day, the cards were delivered to Jenny - - bringing tears of joy for the kind act.......
People look at the magnitude of a life and death situation like Jenny's and they're paralyzed with fear, concluding:
"What can I do about it"?
After reading these words - - - I guess what we can do is - - - follow the lead of a beautiful 13 yr. old girl.....
Its acts like these done totally out of selfless love and concern that will change our world.......
Just like Mother Theresa said, "Do the small things with great love."
Like the love a niece has for her aunt........
And.......all of you have had for Jenny - - -
Thank you for the continued kindness............
Wednesday, January 10, 2001
Later this evening is a party in Steve and Kenny's room .......... and all the HeartMate recipients on the 2nd floor are planning to stop by - - for tacos.........made by Steve's mom.......
Kenny was pumped for a home grown "run for the border" meal........
Meeting these people from different sides of town, backgrounds, education etc. made me wonder - - why would the Lord find it necessary to assemble this particular team? We may never know - - this side of eternity........
Jenny had a tough day in therapy today as she badly pulled a muscle in her left leg......It's so painful, she can barely move the leg into certain positions........
So -- - If you're reading this message Wednesday night, please pray for her comfort;
If you're reading this message on Thursday morning, please pray for her forgiveness !!
The afternoons are usually the toughest because they are the loneliest - -
but, today, Katie Sylvester surprised Jenny with a visit and a few VCR tapes to watch........Anyone seen Sliding Doors???? - - - Neither have I , but Jenny recommends it !!!
At 4 pm today was the second transplant coordinator meeting in 2 days......Today's meeting lasted 2 full hours......
It was intense!!!!!
Basically, the HeartMate equipment was thoroughly reviewed, the purpose of all the wires and cables were discussed, computer screens with diagnostic numbers were analyzed, switching from the power base unit to batteries...then back again.....was performed.......even how to use the handpump when the batteries or electricity failed...........
The handpump was the scariest part........... To use it, the power base unit or batteries would be detached from the driveline on the right side of Jenny's body - - close to the stomach area.........
Then - - the hand pump - a light, manual piece of equipment - is then attached to the driveline .........
Next, one would manually and rhythmically pump the handles together; this pumping action keeps Jenny's heart beating !!!
Simply and utterly amazing !!!
Chris was all over it !!!!
My dad was another issue...........he said, "are you sure you want someone who can't operate a VCR, much less play a tape on the VCR, doing this?"
Suffice it to say, computers and technology.......and now HeartMates...... and handpumps........are not his bag.........
But love, caring and always, always being there in time of need - -- are words that create a picture of my dad......
Tonight, from about 6:30pm - 7:30pm - - Ellie made a visit - - poopy diaper and all !!
To watch Jenny and Ellie spend time together was the highlight of my day !
I've never seen so much kissin' ,huggin' , playin', smilin' and laughing - - it truly warms the heart, and for me, paints kind of a Normal Rockwell type picture....... It's so sweet !!!
These two really love each other and so belong together !!!
Earlier, a HeartMate recipient named Dave stopped by Jenny's room and said he would be going home on Saturday........
In her mind, Jenny compared Dave's physical ability to her own and wondered quietly, "I don't think there's any way I'll get out of here soon....."
You could see it on her face..........just like you could when she was a little girl......
I interrupted her thoughts by saying, ........................."in due time Jenny Boo, in the Lord's time......"
Jenny knew what I meant and .......she smiled........
Tuesday, January 9, 2001
Everyone remember Steve & Kenny ??? If not - - (Click here to see the Steve and Kenny story)
Well, I want to welcome each and everyone of you to - - - Kenny's world - -
Last night, Kenny was kindly offered the opportunity to take a shower at the Martin House facility, which is a short walk from St. Vincent's hospital..... Since Kenny lives in the same room as Steve, and there's no showers in any of these rooms, much less any public showers in the hospital, Kenny happily took the Martin house folks up on their offer.....
bad move by the Martin house staff..........
Perhaps it was the long walk over to the Martin house, or just a long day for Kenny, but he found himself to be very tired upon entering the free room with the welcoming shower.......It was one of those bathtub/shower combos all the hotels have....
Well, Kenny turns on the bathtub water, awaiting the perfect temperature - -
Feeling the warm water on his hand made him even more tired - -
He thought, "When the water warms up, I'll switch over to the power shower......"
Mid-thought, he happened to catch a glimpse of the inviting oversized bed just a few steps away.....
Another brilliant thought entered his mind - - " I'll just lay down on the bed for a minute and wait for the water to warm up a bit."
and so he did..................
After waking up from his perceived short nap, Kenny swung his legs to the side of the bed, in order to put his feet on the ground......
When his feet hit the ground, they began to sink - - in water, - -- covering his whole foot! -- -
Astonished!!! Kenny jumped up and splashed his way to the bathroom, lunging to turn off the water........
Perhaps some un-repeatable words followed - - I don't know - I wasn't there..........
Later that night when Kenny shared this story with Jenny, Chris and I, it started off......
"Dude, you wouldn't believe what I just did....."
But we did believe it - -
because it's "Kenny's world" ...........
and ......
we're all just living in it.......
Now - to Jenny news.......
For the first time, Jenny and Chris took a stroll through the 7th floor of the hospital this morning....(Jenny lives on the 2nd floor and usually just strolls on her "home court".) ...They came across a big picture window that faced downtown....... The sun was shining and the sky was a beautiful clear blue.........Jenny said, "I haven't seen the sun in 34 days - - it's beautiful.........and it feels so good against my face!"
Simple pleasures can bring so much joy........
Dr. Hatcher told Jenny, "When you get outside, your sense of smell will be heightened - - you'll experience nature like never before - - it will be an incredibly enjoyable experience."
Ready for a huge praise?
Chris has not had a cigarette in 9 days since he made his new year's resolution not to do so !!!!
He says, I don't even have an urge to have another one - - how could I after experiencing all of this?"
I admire Chris for his strength....
And - - - I challenge any of his former smokin' buddies currently reading this to follow Chris' lead !!!!
Physical therapy went very well for Jenny today - - - more physical exercise for her legs and arms and more laps around the now famous PT track......It's amazing - - we seem to take her progress for granted......but we shouldn't do that - - every step Jenny takes should humble us and cause us to give praise to God !!!
The doctors have decided to perform another test to see if Jenny's heart is in the process of repairing itself....- - either tomorrow or on Friday.....
The doctors have decided on some new procedures to perform the test......More on these procedures to come....
Previous procedures performed can be reviewed by Clicking here
Jenny told me, "I always listen for the things I want to hear, and don't pay close attention to much else."
Well, today, Jenny received two pieces of heartbreaking news ......and, unfortunately, the news was too close to her heart to be ignored.........
First, Jenny was informed that she is not strong enough to go home this week, and her "release date" will be moved to next week.......
Jenny cried........
There were tears in her voice when she exclaimed to Chris, "I'll never get out of here!"
I'm told it was truly a heartwrenching scene where no words could console -- and, accordingly, the only audio in the room for some time, was Jenny releasing her emotions......
Jenny also received news that she will not be able to drive a car while the HeartMate is in her body..... This will be very difficult as Jenny loved to take Ellie on drives to family and friend's houses to hang out and let Ellie show-off her latest tricks......
Well, today, Jenny received some difficult news........and tomorrow, who knows?
But it's ok - because we know God is sovereign, as it is written in His word:
"All the days ordained for me were written in your book before one of them came to be." Psalm 139: 16
"In his hand is the life of every creature and the breath of all mankind" Job 12:10
Because our lives are in His hands, what have we to worry about?
Absolutely nothing ! Honestly !!!
We should "Be joyful always; pray continually; give thanks in all circumstances, ......" 1 Thessalonians 5:16-17
And what about tomorrow?? Again - we go to the bible - -
"......do not worry about tomorrow, for tomorrow will worry about itself, Each day has enough trouble of its own. Matthew 6:34
And so - I bid you a wonderful day of being thankful for everything in Christ.......
see ya tomorrow......no worries !!!
Monday, January 8, 2001
Dr. Hatcher responded to the "Hatcher harness" concerns from last night:
"Dear Tim,
I spoke with Chris last evening about the "Hatcher Harness" problem. I think we can improve on the design and keep it secure at night. I'm going to meet with Chris and Jenny this evening after I leave work, probably around six. Thanks for keeping me up on Jenny's progress. I spoke with my Bible Study class yesterday about Jenny and you. There are now a few dozen more brother's and sister's praying for her, and some following on "suffering.net." My wife, Sue, and daughter, Colleen, have been visiting on-line frequently. They need encouragement and strengthening in the WORD and your site will be a blessing to them. Thanks.
God's grace be with you.
Ralph "
Jenny had a discussion with a heart transplant specialist today - - the main topic covered was the family support structure, which Jenny happily defined as "very strong."
No detail topics were covered, or even whether a heart transplant is necessary....Time will tell.......but Jenny enjoyed talking about the family and the care and concern of close friends.......
Today, Jenny spent about 45 minutes in physical therapy (PT) .....
The highlight of PT?
Jenny walked around the entire PT room - - - without a walker !!!
The result? Jenny broke into a little sweat......."Thats not like me" Jenny said - - then she laughed......"Hello, I'm sweating......better go back to bed......"!
Similar to the annual Indy 500 statement in years past, "Mario Andretti is slowing down" - - Jenny slowed down - - after 1 lap, (just like Mario!) - - as Jenny complained of pains in her side.....
The issue?
Upper body strength.......So, the next few days, the therapists will focus on building her upper body so she can complete more laps than Mario ever dreamed of ........
For lunch? Burger King from her sister Jamie !!!!! It tasted like gourmet food compared to the general hospital food Jenny's been consuming.......
At about 2:00 pm, Jenny received a massage ......I asked, "how long was the massage?" Jenny replied, "I don't know - - -there was the music - - the back rub - - - I fell asleep ......and I woke up about 3:30 - - - and she was gone !"
This afternoon - Dr. Reisman - one of the pulmonary doctors responsible for the respirator- visited Jenny, and truly marveled at her recovery..... He held Jenny's hand and said, "you look wonderful - - and you've come a very, very long way !"
Each time Jenny has seen Dr. Reisman, he has worn a black turtleneck shirt and a nice jacket and slacks - - always lookin' real spiffy..... Because of this, Jenny has appropriately nicknamed him - - - Dr. Armani.......
Here's some unbelievable news - -- !!!!!
At 4 pm tomorrow, Chris and Jenny begin their "Road to Release" program........
No, Jenny doesn't get out tomorrow........They just begin a 4-5 day program on preparing them to go home.......
How exciting !!! This release program should provide some wonderful details to share with all of you ! Stay tuned!
As I reflect back on December 8, 2000, when Jenny had her HeartMate surgery, Dr. Allen said, "I can't tell you how long the recovery will be - - it could be many months - - it's different for every person.......but, prepare for many months......"
For Jenny ??? She's been in about 32 days !!!!
My thoughts?
Anyone questioning the power of God and the tremendous rewards of prayer is missing the entire point of Jenny's trial - -
I've received many, many e-mails about the positive effect on people's faith from Jenny's situation - -
What I've found is that friends aren't praising Jenny - - they're giving all the glory to God !! Exactly where it should be.......
And don't be fooled - - the trials will increase when Jenny goes home - - -
Remember, - - she must always be hooked up to either the power base unitor to the battery packs in order for her heart to beat............Also, the battery packs have a life of about 6 hours max.......
Can you imagine how difficult that will be????? Now......, think about adding an 8 month old child to the mix..........
Frustration awaits !!!!
The point is - - continued prayers for Jenny and Chris' patience will be more critical then ever in the upcoming weeks......She will need the continued prayers and assistance from friends and family !!!
Will you help ?
Sunday, January 7, 2001
This evening the "Kenny menu" ruled !!!!
Kenny is the guy who quit his job to live, full time, in the hospital with his friend Steve........ Steve is recovering from HeartMate surgery, similar to Jenny's (Click here to see the Steve and Kenny story)
Anyway, Kenny found out the hospital had some optional menus - - with some real tasty food !!!! He showed Chris and Jenny the secret behind ordering the meals - - - and - - - tonight - - - Chris and Jenny enjoyed some excellent tasting lasagna........
Today seemed to be visiting day at the revolving door known as Jenny's room - - - about 15 different people visited today - - - mostly family - - - and Jenny had a wonderful time surrounded by the closest people in her life......some great dialogue, laughs and fun times !!!!
The "Hatcher harness" that secured the driveline for the HeartMate caused a few problems last night for Jenny........The problem is that Jenny moves around all night long, in order to get comfortable......All that activity shifted the position of the harness which affected the driveline..........It wasn't a big deal, but the harness needs adjusting to handle Jenny's late night over-activity....Jenny thinks the best answer is to use the "Hatcher harness" and no tape to cover the driveline during the day and just taping-up the dressing without the harness at night........Let us know your thoughts Dr. Hatcher........
Jenny's been very proud to distribute her new "business card" at the hospital - - which includes her picture, encircled by a big heart, and references this website's address.... Also included - - an inspiring message on the face of the card.......Jenny enjoys it and gets a laugh out of giving them to friends and family !!!!
Jenny and I had a wonderful, but brief, discussion on the meaning behind the following few bible verses:
"And we know that in all things, God works for the good of those who love him, who have been called according to his purpose." Romans 8:28
"Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus." 1 Thes 5:16-18
Giving thanks to God in the midst of all circumstances is the mark of a true Christian.....We thank God not for the circumstance- - - God doesn't expect us to say, "thank you that Jenny had this heart problem that almost ended her life."
There would be no love in that statement........
But we give thanks in this situation..................... for, we know................ God is in it with us. (adapted from my friend, Russ Blowers)
Jenny says she has learned so much through this experience...........
A huge thanks to Danny and Janet for travelling from Chicago to stay with their beautiful niece Ellie this entire weekend....
What a learning experience on both sides !!!!
Most of all, what a loving and caring act to do for a sister in need........ Reminds me of a previous message on this website:
When a friend asks, there is no tomorrow............
Saturday, January 6, 2001
Dr. Allen, the surgeon who saved Jenny's life by performing the 4 hour HeartMate operation on December 8, 2000, spent some time perusing this website........
What would an incredible surgeon, and straightforward, no nonsense guy, with little time on his hands say about Jenny's website??
"You spelled my name wrong - - it's Allen, not Allan........"
Ouch ! You'd think he would've earned the respect.......
my deepest apologies.......
Update on the donor heart issue - - -
Despite Jenny's progress, she has not been added to a donor heart list.....Dr. ALLEN, wants to see how well Jenny's left ventricle of her heart has recovered from being "off duty" while the HeartMate performs its function...... It is his belief that the left ventricle may "repair" itself, and, therefore, there would be no need for a donor heart....It will take time to determine if the left ventricle has recovered........If Jenny is put on a heart donor list now, the new heart could be available before the doctor is certain the left ventricle will or will not repair itself..........
.Is this the right call?
Who knows.....but its the doctor's call to make.....
A preliminary test of how well Jenny's heart had recovered to date was attempted on January 2, 2001.......
The result of this test?
The doctor couldn't properly measure Jenny's heart recovery from the procedure performed......
The benefit of the test?
The doctor now knows he needs to develop a different procedure to perform the test on Jenny.....The procedure performed would probably be appropriate for another patient - - but it just wasn't effective for Jenny....
Click here to understand the testing procedure
Jenny's blood type is B+ - - - or "B positive"..........which, of course, not only defines Jenny's blood type, but her infectious attitude also.......
A "Positive" side note - - - The "B positive" heart donor list is much shorter than the more common "O" blood type heart donor list.....So, if the doctor decides on recommending a new heart, the time would be less than the average wait......
what's the average wait?
I dunno know yet - - write a doctor.............but whatever you do, spell his or her name correctly !!
Today, Dr. Hatcher, the former HeartMate recipient and current heart donor recipient, celebrated his 3rd anniversary of receiving a heart........ He developed something called the "Hatcher Harness" to better support the external attachments to the HeartMate "driveline"........ The driveline is the "mini" exhaust pipe of the HeartMate, and is actually a 1/4 inch tube that starts inside Jenny's body and ends, external to her body, close to the stomach area.
Dr. Hatcher adapted his original "Hatcher Harness" design to fit Jenny's unique driveline setup......
The result??
Very positive ! The line is much more secure and there is no need for tape to hold the dressing covering the driveline area.....Since Jenny has the dressing changed daily, no more tape....
Now, you all remember how much it hurts to take tape of your skin - - - try some heavy duty tape -- and try doing it daily - - no fun !!!
Thanks Dr. Hatcher for taking the time on your "anniversary date" to help out a new friend........God bless you !
This evening, Jenny took another wheelchair stroll through the hallways of St. Vincent's hospital........As always, she attracted a bevy of nurses admiring her attitude and encouraging her progress......
Somehow, someway, Jenny exudes class even as she is being wheeled around in an old clunky manual wheelchair..... Chris and her stop by and visit certain patients in their room ....Jenny's attitude, smile and progress provide needed encouragement and hope where little exists.......It takes a special person to give to others in need, especially when the giver is struggling with their own overwhelming difficulties........
As small as these unselfish actions are on the part of Jenny, they remind me of what Mother Theresa of Calcutta said about our little efforts:
Mother Theresa said, "Do the small things with great love."
I saw this in my baby sister tonight, and I was proud........
Continuing with Mother Theresa: , "The worst disease today is not leprosy; it is being unwanted, being left out, being forgotten. The greatest scourge is to forget the next person, to be so suffocated with ourselves that we have no time for the lonely Jesus - even a person in our own family that needs us. Maybe if I had not picked up that one dying person on the street, I would not have picked up the thousands. We must think ONE, ONE. That is the way to begin. "
Mother Theresa's entire ministry of unselfish giving was based solely on the following bible verses:
"For I was hungry and you gave me food, I was thirsty and you gave me drink, a stranger and you welcomed me, naked and you clothed me, ill and you cared for me, in prison and you visited me." Then the righteous will answer him and say, "Lord, when did we see you hungry and feed you, or see you thirsty and give you drink?".. The king will say to them in reply, "Amen, I say to you, whatever you did to one of these least brothers of mine, you did for me."Matthew 25: 35-40
Belief in 5 small bible verses and she changed the world !!!! Amazing what Christ can do in our lives if we only trust in Him and follow his commands.....
After Jenny's wheelchair ride, she walked 200 feet with her walker in the main hallway!!!! Excellent job !!!!
- - Remember the story about Jenny biting the nurse's fingers? (Click here for a quick review)
That was nurse Debi.......and just like all the CRU nurses, she treated Jenny wonderfully.......Nurse Debi was a big fan of Jenny, and since Debi has reduced her workload, she hasn't been able to visit Jenny in the general area of the hospital....Nontheless, Debi wrote and delivered the following note to Jenny:
"WOW! What progress !!
Glad to see you're off the ventilator....Lookin' good, girl......
Keep it up ! I've tried to get out to see you earlier, but its been wild in CR....
Didn't want to wake you....
Say "Hi" to your family......."
Debi, Respiratory Therapist in CRU
What a thoughtful gesture !!!!
Continued visits from nurses Michelene (sp?) and Kristen from CRU have also done wonders for Jenny's perspective during some difficult and lonely afternoons......
My thoughts?
Think of someone right now who is very important to you, and send them a quick note - - through the regular mail, not e-mail - - and tell them what they mean to you.......
It's amazing the effect it will have on their day !!!!
In fact, a few months ago, I read an article about a person who sent one note a week to someone who was important to them....... He couldn't believe the number of phone calls, meetings, fun times and discussion of past cherised memories those notes generated over a one year period.......
There is such power in thoughtfulness......
The article convinced me, so I bought some note cards and decided to send a card a week........
To date, I received a few nice cards in return,
and you know what?..........
Each one of those cards had made my day...........
Thank you again for your prayers and concern for Jenny....... The credit for her amazing progress goes to the Great Physician - Jesus Christ.........I appreciate your prayers to Him on her behalf........
Friday, January 5, 2001
Jenny got real sick this morning - - throwing up, the dry heaves etc..... and the source is unknown.....
Jenny's sure it was the gourmet hospital breakfast food, but we're not sure.......
Once she received a pill to address the problem, it went away...... Tests are now being run to determine the source - - - so, more to come......
Jenny reported no more problems the rest of the day........
Despite this setback - - - Lets switch gears a bit - -- Ready for some real great news ???
The doctor said if Jenny continues her amazing progress, she will be scheduled to return home some time next week !!!
However, its a gradual release program:
1st day of the program - - she goes to lunch with Chris for about 3 hours; then returns to the hospital....
2nd day - - she can go home for a total of 6 hours; then returns to the hospital...
3rd day - - she goes home for a 24 hour period; then returns to the hospital...
4th day - - she goes home to be with Chris and Ellie for good !!!
Dr. Allan said, "her progress has been by leaps and bounds... I think Jenny can meet this schedule......."
Can you believe it???? Less than 1 month ago, Jenny's life was in serious peril.........and now, she has been given a second chance at life !!!! Praise God .....
Please continue to pray to God for Jenny's recovery and strength, so that the Lord might allow her to meet this aggressive schedule !
One of the steps that has to take place prior to leaving the hospital is understanding thoroughly, the HeartMate process.....This may take a few days next week, and includes, but is not limited to :
St. Augustine once wrote, "Everywhere a greater joy is preceded by a greater suffering."
Clearly, Jenny has suffered greatly, and certainly, greater joy awaits !
Jenny only performed half of her physical therapy this morning as she just wasn't feeling well at all......
Jamie's surprise lunchtime visit with a Steak N' Shake cheeseburger in hand, was a welcome relief from the hospital food Jenny's been eating......... Despite the sickness, Jenny chowed !!!!
During the quiet times of the afternoon, Jenny usually takes some time to pray - - asking for peace, comfort and courage to handle her difficult road........ Today, while praying, she felt the bottom left corner of the bed push down a bit - as if someone sat down at the end of the bed to listen and comfort her.........Jenny was not startled or afraid, she just felt a peace about the whole situation.........She thought it might be her grandma, grandpa or aunt rosemary, who have each left this earth....Jenny said, "I'm doing ok, thanks for thinking of me....."
After telling me the story, she thought about the ramifications.......
Jenny hesitated........, "don't write about this, Chris already thinks I'm losing my mind.,........ You know, this story just confirms his suspicions."
Ah, the power of the pen..........
I'm convinced her "visitor" has always been with her - - and is the one who inspired the following in Psalm 23:
"Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me. "
This morning, Jenny also had a 99 degree "low grade" fever......by the end of the day, her temperature had moved to the normal 98.6......Praise God !
Gettin' sick this morning, the low grade fever, pains from being in bed, feelings of loneliness at times, the anxiety in waiting - - - all this - - and Jenny has the most infectious, wonderful attitude ........ Tim Hansel, in his book You Gotta Keep Dancin' said, "I believe that pain and suffering can either be a prison or a prism."
In the midst of her difficult situation, Jenny has brightened the lives of all who have met her or read about her --- just like a prism when it receives a little light !
Case in point -- this evening, Chris switched Jenny over to the battery packs, and helped Jenny to a wheelchair for leisurely stroll through the second floor........A pretty common occurrence these days........Jenny gets in the wheelchair and her smile widens........It's freedom - - - from that awful bed !!!! Chris gets a wild hair and says, "Jenny, do you want to see where you spent the first 2 weeks of your hospital life?" ." Ever the adventurer, Jenny said "sure!"
5 minutes later, we arrive at the Cardiac Recovery Unit - - - during "shift change time", when some nurses end and others begin their workday....... Chris turns the corner with the wheelchair, and nurses come from all over !!!! There were smiles everywhere!! The nurses - - about 10 of them - couldn't believe Jenny could speak ! They had never heard her voice before !! They had never seen her situp before!
There were hugs and misty eyes all over - -
Jenny was amazed !
She really couldn't place everyone - - but they all remember Jenny very well !!!
We told Jenny there were about 20 more nurses that weren't there that night who would just love to see her !!!! Jenny replied, wide-eyed, 'You're kiddin' me, right? I had no idea !!"
Jenny had a tough afternoon sitting alone in her bed today, but the nurses in CRU really changed her focus!
Reminded me a little bit of the movie "It's a Wonderful Life........."
Anyway - - - to those wonderful and caring nurses in CRU - - thank you, from the bottom of our hearts, for taking care of Jenny......It never seemed to be a job with you, it seemed you always led with your heart first and then your knowledge.......We are grateful for your kindness and professionalism........
As the anticipation grows for a set "release date" from the hospital, I offer the following prayer for Jenny to memorize from the Holy Bible: (Thats right John Babes - homework !)
"Be joyful in hope, patient in affliction, faithful in prayer." Romans 12:12
Thursday, January 4, 2001
Yesterday, the doctor performed some strength exercises on Jenny's legs and arms.......
He said, "don't let me move your legs..."
Try as he might, he couldn't budge Jenny's legs.........
It was a repeat performance on her arms.....
The doctor said, "I can't move you at all - - you're very strong....great job !"
Chris said, " she's always been strong - - when we wrestled around, I had tremendous difficulty keeping up. "(I'm assuming, of course, as you also are, that this 'wrestling around' took place only after their marriage vows 5yrs ago.....)
Jenny retorted, "I used to toss his butt all over the place - like nobody's business !!!"
This morning at 11 am, physical therapy was the usual walking around with her walker.......2 laps around the unit !!!
However, the walker should be "tossed aside" very soon.... Please pray for this significant step to take place.........
Jenny read the info on this website last night and she commented, "I can't believe this is about me!! It brought tears to my eyes many, many times......It's wonderful......."
Jenny's friend Dallas told a story from 1 week ago that I had not heard.......
Dallas said that Jenny repeatedly asked Chris one night to "warm up the car because we're busting out of here tonight..." All night long, she kept repeating this to Chris....... over and over..........
We believe this "discussion" took place the night before the botched The Great Escape on Dec. 27....
Memories of the past 3 weeks come back to Jenny - - some that actually took place, some that were just dreams, .......and she would tell Chris about it...... Chris would be stunned and respond "you don't remember that !!! You were wide awake !!!" Other events Jenny would recall, took place when she was totally sedated, and not responding at all.....Chris would then reply, "How did you know about that?"
In another story, Jenny was sure she was at an unknown house and Mack and I were telling Jenny to stay there.....Mom and dad were also in the dream and were telling Jenny to stay in the house....... Jenny was certain this took place and asked Chris, "When did they move me to that house?" Jenny was stunned when she learned she had never left the hospital......... Interesting how the mind works.......I remember the day Mack and I were in the room, and Mack was saying repeatedly, how well Jenny was doing and how important it was to stay at the hospital and recover.........I believe she heard and remembered Mack's words and somehow related the hospital to a "house"...
The point ?
If you find yourself in a similar position as we did the past few weeks, talk to the person who is in bed and seemingly unconscious........ Jenny's comments prove that the person does hear - - selective as it may be.......
Today Jenny said, "I'm lonely"..................but I know I need my rest - - and when people visit I can't rest" ..........
Catch 22......
However, my plea has not changed - - please don't call Jenny on the phone or come by to see her - - until she attains a bit more strength...... She would certainly be upset with me about writing this, but Chris, my family, the doctors and nurses concur with my message..... Thanks - - and of course, it's best to continue praying for her recovery !
Jenny said, "I like the family visits and I guess that's enough for now..."
I received the following email from Dr. Hatcher, who visited Jenny yesterday. He is a former HeartMate recipient and current heart donor recipient:
"Jenny appears to be doing quite well physically, emotionally and spiritually. It takes great faith and trust in God to have Jenny's positive attitude and optimism. I went to visit Jenny in hopes of strengthening and encouraging her, being an example of health after going through the same ordeal. I have visited many others over the past few years, similarly. I came away encouraged and strengthened by her example! I told Jenny and Chris that I would try to come up with an idea to help with her "drive line" problem. I've got an idea, and will work on it this weekend. Please tell her I'll be by Sunday or Monday to visit again. For the record, I received a "HeartMate" on July 13, '97, and received a transplant on January 6, '98 (my anniversary is Saturday). I returned home from the hospital on April 19, '98, and returned to part-time work in September, '98. I now work full-time in the ER at Witham Memorial Hospital in Lebanon and teach part-time in the Pharmacy School at Butler University. My wife of 24 years, Sue, and four children, Wes,22, Catherine,20, Colleen,19, and Thomas,16 are the heroes of my story. They endured terrific hardship and stress, but kept the faith and gave me reason to keep plodding on when I wanted to quit. Of course my ultimate strength came from trust and faith in my Lord and Savior, Christ Jesus! Although a nominal Christian most of my life, I came to know Jesus as my personal Savior during some of my darkest moments while in the hospital. "It is good for me that I was afflicted, That I may know Your statutes. (Ps.119:71)"
Seeing people like Dr. Hatcher and Dave from the Physical Therapy room, who are living normal lives with HeartMate, really provides encouragement and hope for Jenny......
Ellie update !
This evening, Jenny spent 2 hours with her baby Ellie !!! They had a wonderful time - - and Ellie did all her new tricks including the now infamous wave bye - bye..... Jenny kept saying, "She's sooo cute!"....
And so ............the long day ends........ with mommy and daughter playing, laughing and loving each other........The perfect picture of contentment.......
The apostle Paul talked about being content in his book to the Philippians:
"I know what it is to be in need, and I know what it is to have plenty. I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want. I can do everything through him who gives me strength. " Phil 4:12-13
Indeed - - Jenny is currently learning Paul's message.........
Wednesday, January 3, 2001
Baby food is out of here !!!!!
Check out the food Jenny ate this morning and afternoon:
- Scrambled eggs and juice for breakfast
- Roast "beast", mashed potatoes and broccoli for lunch !!!
- To drink ???? Ice cold water buried, of course, in ICE CHIPS !!!!!!
Jenny's keeping a full cup of ice chips next to her bed at all times.......It's what she craved for days - - - and now, she can have as much as she wants !!!!
The doctor said Jenny can eat anything she wants now - - - so far, no cravings for any special food - - just a need for ice chips,,,,,,,but if we need to make a "run to the border" for Jenny - - that would be ok !!!!
ALSO - - - Jenny had a very, very special visitor this morning - - - Ellie Walker - her baby!!!!!
Ellie's reaction:
Ellie just stared at Jenny the whole time, with those big blue eyes, as if to say, "Mommy, Is that you ??"
Jenny's reaction:
OH MY GOSH - - LOOK HOW BIG ELLIE IS !!!!! AND ALL THAT HAIR - WHERE DID THAT COME FROM???? OH - AND ELLIE'S SOOO HEAVY !!!! SHE'S SO WONDERFUL !!!!
Jenny got to hold her little baby, and, at last, all finally seemed right with the world........It's been almost a month since Jenny's even see little Ellie !!!!
....and Ellie just continued to stare at her mommy as they sat together in bed........
Ellie even joined Jenny at physical therapy today for her morning walk........
Pictures of this special "reunion" to be posted on this website soon !!
Ellie also brought a new friend of hers to meet her mom:
The new nanny !
Jenny, and the rest of the family, really like this lady......
She provided tremendous words of comfort when she said, "Jenny, I don't want you to worry about anything; I'll take care of your daughter like she's one of my own."
Jenny couldn't stop smiling !!!! "It makes me feel good" Jenny said......
What did you do at 3 pm today????
Jenny had a full body massage, compliments of St. Vincent's hospital !!!! It really seemed to help relieve the pain in her back - - so, I'm sure the massage therapist........ will be "back" !
Jenny asked me to print out the website ........ I said, "Do you want all the links printed also - - like the HeartMate booklet link?".....
"No", she said, "I don't need to read it - - I'm living it !"
When Chris shared some of the major events from the first few weeks Jenny was in the hospital -- she was amazed......
She just doesn't remember much AT ALL from the past 3 weeks .........
"I don't remember anything about the Emergency Room!"
"I don't remember anything about coming in and out of consciousness after surgery"........Jenny didn't remember smiling every time anyone mentioned Ellie's name - - or smiling each time after seeing Ellie's pictures..........She didn't recall having a very frightened look on her face and trying to pull our hands over to the noisy contraption in her stomach area.....She couldn't speak due to the respirator, but she was saying "Help me - what is this? where am I?" Jenny didn't even remember communciating with us the only way she knew how at the time - - by hand squeezes and frustrated looks.........Seeing our baby like that truly broke our hearts.......but we knew God was and is always in charge.......
Thank goodness she doesn't remember experiencing all those moments - - they were tough - - confusing and heart-breaking......however, one smile from Jenny in a day and we considered it a wonderful success...... and went home happy and hopeful..................
One of the first things Jenny did recall was doing the "Planet of the Apes" face with me on December 16th!
"You know", Jenny said, "I really like having Chris here at night. It's 2 in the morning and I wake up afraid, looking around the room - - its so comforting to see Chris sleeping there......All I can think of is, thank goodness, I'm not alone tonight........and then I can go back to sleep...."
"Actually though, to get back to sleep at night, I think about the Andy Griffith episode from that day....... I try to remember all that happened, and eventually, I figure out the details and fall back to sleep, smiling........."
"I'm still so weird" Jenny said.......
I concurred in my mind, but my words were, "Naw, we all know you're awesome John Babes"..........
Jenny had another visitor this evening - - Dr. Hatcher.....
Dr. Hatcher had a HeartMate similar to Jenny's for a 4 month period - - all of which were spent in the hospital........At that time he received a donor heart......
Now, he works in the ER and, when he finds the time, talks with HeartMate recipients about the road ahead.......
Jenny's HeartMate is a bit different than Dr. Hatcher's old model, as Jenny will be able to go home once she is strong enough to do so .........Perhaps weeks away !!!!
Today, Jenny looks exactly as we all remember her - - - her strength is returning, her face shines, her attitude is positive, her voice is strong and her wit is keen.......
and every person that's ever met Jenny in the hospital over the past 3 weeks has come by to see her...... Her attitude is infectious and people just want to be around her.......but then, that's always been the case with Jenny........ALWAYS........
Regarding the prayers of the Notre Dame football team for Jenny's recovery..........
thanks guys, your prayers were answered, however, I am sorry to report that Jenny was unable to return the favor..........
Oregon State 41 ..... Notre Dame 9......
Tuesday, January 2, 2001
The telephone rang at Chris and Jenny Walker's house this afternoon.......
My mom answered the phone - - - she is watching Ellie today.......
"MOM, I PASSED !" Jenny exclaimed !!!
Jenny was excited !!! She passed the swallow test today - - great news - - - AND - - -
THE FEEDING TUBE WAS TAKEN OUT SHORTLY THEREAFTER!!!!
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5 things to share from today and last night:
1. The details of the swallowing test
2. The echocardiogram test
3. Physical therapy
4. Last nights events......
5. From here........
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1. The details of the swallowing test
An ultrasound screen covering Jenny from the neck to the stomach recorded the results of the swallow test.....
First up - - Jenny drank a little of "some kind of liquid" and ......everything worked perfectly.....Remember, something like 30 - 50 muscles or "flaps" have to work perfectly for the liquid to end up properly in the stomach..... and Jenny's were working perfectly..... as displayed on the screen and viewed by all in the room..........
Next - some water....... Jenny hasn't had a cup of anything to drink in over 1 1/2 weeks...... She has been so parched in her throat, it's almost bought her to tears........
Yet, she didn't chug it....... she took it easy - - - and the results were........perfect !
Now for some "Ellie type" food - - apple sauce !!--- Same Result !!! Chris was amazed to watch the food go down the throat and into the stomach - - it was an amazing process to view on screen !!
Finally - - A cracker !!! - - Well,......that one got stuck a little bit, but eventually found its way down the right tube and into the stomach........
Total success !!!! Since every success deserves a prize - - the feeding tube was not put back in her nose !!! What a praise !
What can Jenny eat now ???
Ice chips !!!!! She can also finish anything Ellie won't eat !!! So, "softer type" food will be on the menu for a little time now for Jenny.......
2. The echocardiogram test
The purpose of this test was to see if Jenny's heart had regenerated; gained some of it's strength back...... or was able to operate a little more on its own.......
Jenny's HeartMate was put inside her body to help her left ventricle pump blood through her body..... Before the HeartMate, her left ventricle was pumping at 10%.....With the HeartMate, it was pumping at 100%.... the question was - - can her left ventricle pump at more than 10% if the HeartMate is turned down?
Why is this important?
There's a possibility that Jenny's left ventricle could repair itself while the HeartMate has been doing its job for the past 3 weeks.......The left ventricle could never "get a break" to fix itself because it was busy day and night trying to pump blood through the body...... Now, with the HeartMate, the left ventricle has a chance to rest and possibly repair itself....
Back to the story - - -
Jenny's HeartMate was pumping at about 70 beats per minute when the test began........Slowly, it was turned down...
to 65.......60.....then, to its lowest setting of 50.......
The attached Ultrasound allowed viewing of the heart to all in the room.......
Jenny was unaffected........She was just smiling and asking "how am I doing?"........
What happened was Jenny was in a state of rest and her heart didn't need to pump over 50 beats per minute to sustain her......50 beats per minute is fine for someone laying in a bed, resting.........If she was up, strolling about with her walker, her heart rate would rise........The doctors needed to turn down the machine lower for Jenny's heart to take over.......but this version of the HeartMate wouldn't go any lower than 50 beats per minute.........
So, then , why not perform the test while Jenny is active and it's necessary for her heart to pump at a higher rate than 50 beats per minute???.......
Makes sense, but then the doctors couldn't use the Ultrasound machine to view the results......
The answer??
Well, the answer is to turn the HeartMate machine off, attach a hand pump and manually pump her heart at the desired rate - - perhaps 40, 30 or even 20 beats per minute.........The key is, determine what the necessary heart rate is to sustain her life, then, manually pump at about 5 beats per minute under that, and see if her heart can make up the difference on her own.....
Here's an example - Let's say Jenny needs her heart to be pumping at least 30 beats per minute to live, while laying down in her bed........The test would then be - - use the manual heart pump to attain a setting of about 25 beats per minute and see if Jenny's little heart can make up the 5 beats per minute difference.....
Risky????
You bet........
It's never been done at St. Vincent's before........but it has been done at a hospital in Texas......perhaps others....
Also, the "thick version" of the HeartMate manual lists a number of precautions when performing these steps........
There were about 12 people in the room at this time, .............but since all of the appropriate doctors were not present, the test was not performed.......
The HeartMate was turned back up to 70 beats per minute, and nothing else was performed.........
Remember, the test was just to see how much her heart had strengthened........if any........
This test was not necessary because Jenny was having problems; rather, it was strongly considered because her recovery has been nothing short of phenomenal !
(Click here to return to Friday January 6, 2001 writeup)
3. Physical therapy
This morning, Jenny got to use the NewStep machine her "HeartMate" buddy Dave used a few days ago......It's a machine you sit in and work on your leg strength.......
The therapists wanted Jenny to work out and measure the effect on her heart rate........If her heart rate started to go up too quickly, the therapists and nurses would know that Jenny would not be ready - - at this time - - to partake in the normal day to day activities of raising Ellie at home....
"Jenny, let's try 2 minutes on the machine..."
........2 minutes later, her heart rate did not change.....
4 minutes more on the machine with minimal affect on her heart rate - - and the therapist replied, "Jenny, you are in shape !"
8 more minutes of workout and Jenny's heart rate went from 63 to 65
10 more minutes of working out on the same machine !!!! - -- and her rate inched up from 65 to 67 beats per minute.....
The therapist's were amazed and remarked, "No one has ever responded so positively !"........
Next ...............Jenny took 3 laps around the PT area with her walker...........
After performing all this, Jenny then took her swallow and echocardiogram tests mentioned above !!!!!
Way to go John Babes !!!!!
4. Last night.........
Jenny's back was "killing her" all last night ........... She tried, but could never get comfortable......
No position provided any relief - - despite trying them all !
She knew she had to rest because that next morning was therapy and then the 2 biggest tests of her life - the swallow test and the echocardiogram !!!! .................Perhaps this added to her inability to sleep..............
Let me state the obvious - - craving sleep and unbearable pain are not good bedfellows !
Then - - the nurses began to visit:
1:45am - vitals were taken
2:00am - new dressing on her HeartMate
3:00am - weighing in .....
4:00am - more vitals
Did I mention all the bathroom breaks in between???
Question - - - After going through all this - -- could you respond with the same great attitude Jenny has shown ????
5. From here.........
From here, Jenny needs to continue to build her strength, increase her workouts at physical therapy, REST A WHOLE LOT, and learn the day to day operation of the HeartMate........
Of course, sometime in the near future will probably be the "heart strength" or echocardiogram test........more to come on this groundbreaking procedure !!!!
You know - - it's difficult to impress doctors and nurses ........and yet, each doctor, nurse and physical therapist we've spoken with has truly been amazed with Jenny Boo's recovery !!!! It's simply the power of prayer.........and I thank all those who have read these words and prayed for Jenny's recovery.........You words are being heard and acted upon.........and my whole family thanks you for your continued faith, trust in God and belief in Jesus' words.......when Jesus said.....
"You may ask me for anything in my name, and I will do it. !" John 14:14
On a Side Note.........
..Mackie and Jamie purchased Jenny a couple of coloring books and the BIG, 64 pack of Crayolas, ........ complete with a necessary crayon sharpener in the back......Just like Grama used to buy when we were sick - back in the day........
My comments on the selection?..............Excellent gift..............BUT...........
it's not......
an official Red Rider carbine action 200 shot range model air rifle - with a compass in the stock........
Good 'Ol Blue..........
Monday, January 1, 2001
......Happy New Years Day !!!! ..............
Ellie update...............
This week - - - It looks like Katie Sylvester will be watching Ellie during the day, Jenny's sister Jamie and her husband Ahmed at night - or mom and dad,
and Jenny's brother Danny and his wife Janet over the weekend..........
The plan is to have a baby crib at each house, and a couple of baby car seats for some of the cars...... Ellie will get to see alot more of her aunts, uncles, grandparents, and cousins.............which quadruples the amount of love she's currently receiving - - if thats even possible! What a blessing for all of us ! And hopefully, not too hard for Ellie......
The daytime nanny starts work on Jan 9, so the above plan covers most of the time in the interim........At night, after Jan. 9, we thought Chris may not spend each night at the hospital with Jenny and may be able to be at home with Ellie (aka Elbert...)
Are there any words to describe the love and concern that true friends and family have for Jenny Boo ? This situation has taught us much about that topic - - And - - - I have never seen a better application of the following than the caring response of each one of you......
"When friends ask, there is no tomorrow."
Jenny misses her baby Ellie so much and needs to see her so badly................ Today, she was watching an Ellie video that Chris made from the past 2 weeks of Ellie's young life....
- - Little Jenny was in tears during the whole video and her heart just ached to hold her baby...... While viewing the video, her uncle, Father Pat Doyle, Pastor of St. Joan of Arc church, entered the room and provided some kind words .....which turned Jenny's tears into hope from sadness...........God's timing is perfect..........
Jenny's morning routine includes switching the HeartMate to the battery packs and taking a 45 minute stroll down the hallways and throughout the hospital....... One month ago, this "stroll" would have been a necessary step just to get somewhere..... Now, it's the event of the day.......
And that's ok, because there's tremendous joy in experiencing what we normally never even give a second thought to........
Tomorrow, the scheduled EKG may not take place...... It has nothing to do with Jenny, it's more of a doctor availability issue......However, at 1pm tomorrow, she does have a throat and swallow test, which, we believe will be positive. The reason we believe this, is because her voice is becoming stronger every day!!
Do you have nights like this ? At 2am, Jenny was weighed........At 4am, the nurses took blood - -
before and after these 2 events, "vitals" were taken by the nurses, AND.....multiple bathroom breaks were also necessary ...........
Every mother reading this is probably saying.... "and???"......."what else?" The point is - - Jenny needs to continue to sleep and rest during the day because of the full night time schedule.......
Ready for a story????? .....................
I was hustled yesterday...........
Jenny doesn't enjoy performing her breathing exercises at all.....
The result ???
She doesn't do them as much as she should, despite repeated warnings from the nurses.....
Chris said, "Let's do some breathing exercises......." Jenny responded by rolling her eyes and losing her smile.....
Sensing a chance to help the situation, I said, "John Babes, I'll give you $1 if you can hit 1200 on that there breathing contraption...." (apologize for the language - - we've been watching too many Andy Griffith tapes.......)
Struggling, or so it seemed, she reached the 1200 mark, ..looked at me, clicked her fingers and said, "fork it over."
I did, ...........but I was smart......... or so I thought.......
I waited for her to do a few more - - so she'd tire out a bit - - and......... it appeared she was tiring - -
the next 3 breaths barely reached 1100 and were declining.......
Time to strike, I thought.................I said, "John Babes, I'll give you another 'George Washington' if you can hit the magic 1200 again." .........
Smiling, she seemed to draw a breath reserved for such a challenge..........and, of course, she amazingly hit the target.......
I thought, the heck with 'fool me once shame on me......' - - I was setup twice by my baby sister...... and I needed to let her know who was in charge here..........
I reached down in my bag and pulled out another 'Dead President' - - this time - - - one with a picture of my hero Abraham Lincoln on it...... a $5 bill !!!
Repeating a phrase that was sure to get me a win this time ........I said,
"John Babes, me and my good buddy Abe Lincoln here don't think you can hit 1250 on the "tube"........."
Jenny's eyes squinted.............., a serious, focused face replaced the harmless smile I had just witnessed.........and I knew I was in trouble..........again..................
She looked over at the bill in my hand, as if to say, "Show me the money!!!".........
however, no words were spoken.................
The 'swooosh' of the HeartMate was all that could be heard, as Chris and I held our breath......
...... I tightly grasped Abe........
Big Breath in.......Then out...............Jenny blew into the long blue tube....................
Chris leaned over the plastic contraption to get a reading..............
"1250" - - exactly........Chris started laughing and dancing................
Jenny, tired, but not too tired to click her fingers again and motion for Abe, demanded the prize for her efforts.....
"Ready to go for 1300?" Jenny said, acting more tired than she really was.......again.................
No response from me.................... I was Joe Frazier to Muhammad Ali's 'Rope-A-Dope' scheme in the big fight of the 70's.......
"Just let me know when you wanna go again Timmy !"
I muttered, "Never - - would be too soon........."
I suspect today, however, I'll try again.................
and probably reconfirm who has always been the boss in our relationship !!!!
New topic - - - There are great stories behind these hospital walls that never get told.........Here's one that's getting a chance.........one on friendship.........
Steve is a 30 yr. old HeartMate recipient currently in St. Vincent's hospital... He is on the same floor as Jenny, about 10 doors down..........Both his left and right heart ventricle did not work (as a comparison, Jenny's left ventricle was working at 10% and her right ventricle at 100%)...... As a result, Steve required the largest HeartMate product available........
Steve's Thor-tech "battery pack" is a 400 lb. "portable" grocery-cart sized unit....(Jenny's is truly portable at about 6 lbs.. and Jenny wears the batteries around her shoulders in a harness......)
Steve's been in the hospital for 6 months where he must stay under constant care until he can receive a new heart........
After 3 few months of being in the hospital, Steve's wife gave birth to their baby - - - and Steve actually got to "wheel down" to the delivery room and witness the birth !
His new role as father, his difficult, new life of confinement in the hospital, and his focus on his perceived inabilities led him into the center of a deep pool of depression.........
Steve's will to live was diminishing.......
His friend, Kenny, tried, but couldn't help Steve cope with his situation........
Desperate to help his friend, Kenny decided to quit his job and "move in" to the hospital and live with his buddy......... For as long as it took for his friend to get better........
Unbelievable sacrifice !!!!
Steve's mood changed almost overnight.......and why not???? He was with his good buddy - - just like his old "single" days !!!
Well, this past week, Steve received some unbelievable life saving news - -
Steve is currently second on the list to receive a new heart !!
Once he receives a new heart, there's no need for a 400 lb. piece of equipment - no need for a hospital - no need for a HeartMate ........ Hopefully, all he takes away from the hospital is his friend Kenny !!!!
A new heart is a new life !!!
Consider the actions of his "brother" Kenny and the future provision of a heart from his Father, God......
Reminds me of a verse that addresses both....
"There is a friend who sticks closer than a brother." Proverbs 18:24
(Click here to return to January 7, 2001 writeup)
Sunday, December 31, 2000
Happy New Years Eve ..............
Jenny had a tough night last night - - she can't seem to get the nurses to respond timely to her "nurse call button".....Last night, it took 20 minutes to respond to a call...................... thats just too long.......
The way it works is the nurses have beepers, and when the patient pushes the "nurse call" button, the nurse is immediately beeped with the patient's room number....... that way, no matter where they are, they know there is a need.......Sometimes, they're attending to another patient in their room, BUT...... they are beeped immediately - - - we tested it today - - - So, why 20 minutes to respond ???
Its certainly tough now because of the reduced nursing staff during the holiday season...............
This morning, Chris hooked Jenny up to her battery packs, and they strolled the hallways.......This really lifts Jenny's spirits anytime she can get out of that bed................and it scares Chris.......... He has to make the switch from powersource to battery packs, and ......during that switch, he literally has the life of his wife in his hands......
Every person Jenny passed in the hall, staff or visitor, was met with the same request......
"May I have some ice chips, please?........"
Strange looks aside, Jenny still smiled wide, hoping to win some sympathy.........
Jenny's not able to swallow any liquids or food until the throat test is performed on Tuesday...... Pray that she passes that test, so she can rid herself of the last tube in her body....the dreaded feeding tube in her nose.................Although her body is receiving all the necessary fluids through her feeding tube, her throat is just parched.........
However, there's still a concern that fluids going down her throat may mistakenly end up in her lungs......which would create big problems.......and the possibility of going back to the respirator for breathing.......... which definately means Jenny would not be able to speak at all...................
the right answer?.................... no fluids through the throat.................
Determined as ever, Jenny still asked every nurse, friend or visitor, .....with her puppy dog eyes, ...........for some ice chips..............
Jenny was reading a bunch of cards she received today - - probably about 50 of them ! She really enjoys receiving them, so thank you, for taking the time...........and.................keep 'em coming' !!!!!
Many of the cards mentioned prayer services being held for Jenny....... all throughout the country !!!
I was told today by Mrs. Burns' daughter in law that the Notre Dame football team even said a prayer for Jenny ! She explained how the news reached them, but it was too complicated to follow........ I told Jenny to return the favor and pray for them during their bowl game tomorrow night.............She thought it was the least she could do ..........
One message that has been continuous over the past week from the nurses and doctors is the amazing speed of Jenny's recovery....... Believe what you will - but I'm convinced this is due to prayer.........Some might refer to the healing ability of the body and Jenny's young age as the main factor to her recovery - -
but I would ask - -
who created her body in the first place? - - and who gave it the ability to heal?
Another prayer request - - Since Dec. 7th, when Jenny entered the hospital, Chris has been working on quitting smoking....... one day at a time...... Jan 1, 2001 is his date to go cold turkey and quit........ Please pray for his strength and for God to make the smell of smoke awful to him, so that he has no desire to continue smoking.......
Thank you for your continued prayers for Jenny !
Saturday, December 30, 2000
Last night was another good night for Jenny................
She had to get Chris' attention late last night and she couldn't wake him up with her weak voice.......
Calmly, she reached down, took off her sock, made it into a ball, and threw a "Drew Brees" type strike - - connecting squarely with Chris' face - - and thus, accomplishing her objective !!!!
She just needed to talk....................
This morning when she woke up, a nurse was in her room........ Jenny was wide-eyed ......
The nurse said "what's up, Jenny?"
Jenny responded, "I just dreamt I ordered a pizza..............."
Throughout the day, the nurses continued to comment on how they were going to fit a pizza down her feeding tube........
Jenny called mom this morning for a short one - - informing mom she was going to physical therapy....
It wasn't the message that was important, it was the fact that she could actually use the telephone on her own.......
She called her sister Jamie just to say "Hi"...........for the exact same reason .......
This time at therapy, they did not unhook her form the HeartMate powersource, so her movement was limited to the length of the powersource cable........ All added up - - she went around and around with her walker to the tune of about 60 feet! Jenny was real pleased with her performance !
Jenny has a big day scheduled for Tuesday Jan 2, 2001.......(Please say a special prayer for her on that day !)
- First, the cardiologists are performing an EEG on Jenny and will turn down the HeartMate a little,............. and see if Jenny's heart can make up the difference.......The point is to see if her heart has strengthened at all........
- Second, a "swallow test" will be performed at 1 pm.....
The result of her throat test yesterday was positive -- there is no damage that time can't and won't heal, her vocal cords are moving.......however, the left vocal cord is not as responsive as the right - - BUT, today you could understand everything Jenny was saying !!! Every third or fourth word was as loud as you are I speak !!!! Her voice is raspy, but its truly improved and will continue to do so every day ! Praise God for his provision.......
I wish you could all see Jenny's smiling face ........Her improvement is truly amazing, but not half as much as her attitude......She truly has been an inspiration for our family and a true testament to the power of prayer for everyone else............
Jenny and Chris watched the Colts game together today....... They both slept through the half time....... and Jenny, Chris and the Colts slept through the 3rd quarter.............. The Colts lost the game - which upset Jenny.........and Indianapolis...
She commented that she really misses Ellie so much, and can't wait to see her........ Unfortunately, Ellie has a cold, and like her mom from a few nights ago, Ellie did not sleep at all last night..........Poor baby .......... But grandma is there to help her through...................and after having 7 of her own children, experience is in her corner............
I told Jenny I watched the Colts football game with the Weimers at Pat Flynn's restaurant....... and I apologized for the smell of my smoky clothes......... She said she could actually smell them..... and commented........
"It smells like Chris when he comes in here - - - he has to quit smoking......."
So, Chris, get crackin'................
Jenny and I watched an episode of Andy Griffith on tape this evening - - we picked a particularly fine selection - - including one, Earnest T. Bass - - a classic.......
However, Jenny didn't want to watch all 3 episodes on the tape as she was tired and needed her rest........
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Chris had a nice discussion with nurse Rita yesterday about Jenny's progress........
Naturally, the topic turned to coping with difficulties and trials...... Rita said a very comforting statement to Chris....
"God won't always give you what you want; but He will give you strength to cope with the difficulty.....and the strength is really what you need to get through it........"
Rita's comments stirred my thoughts:
The apostle Paul, in the bible, went through some terrible trials:
Paul asked 3 times that Christ might remove a difficulty from his life, a self described "thorn in his flesh"........(note> it's best we don't know exactly what Paul's "thorn" was - - - that way, it makes it easier to identify our own "thorns" with his ! )
Christ said to Paul in response to his request for the removal of the "thorn" - "My grace is sufficient for you, for my power is made perfect in weakness."
Paul replied, Well, then, "I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong."
See - - - the true mark of a Christian is weakness - - humility - - a total reliance on Christ.....for everything.....
Therefore - - - - the strength that Nurse Rita is talking about is really.....................Christ's presence............................ - - Christ prefers we be weak, and empty..............so He can be strong........and we can see the need for Him in our lives........
Consider his answer to our prayers:
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I asked for strength, and God gave me difficulties to make me strong.
I asked for wisdom, and God gave me problems to learn to solve.
I asked for prosperity, and God gave me brain and brawn to work.
I asked for courage, and God gave me dangers to overcome.
I asked for love, and God gave me troubled people to help.
I asked for favors, and God gave me opportunities.
I received nothing I wanted; I received everything I needed.
My prayers are answered. (Packer, J.I. - adapted)
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"We ask for strength that we might achieve; we are made weak that we might obey.
We ask for health that we may do greater things; He has given us infirmity that we might do better things.
We ask for riches that we might be happy. He has given poverty that we might be wise.
We ask for power that we may receive the praises of men; We are given weakness that we might feel the need of God." (Andy Neckar)
Result???? In the long run, we don't need human strength - - - We just need Christ !
(If interested, see an analysis of Paul's Thorn in the Flesh)
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Thank you for keeping up with Jenny....... She told me today how much she appreciates all your thoughts and prayers........
Friday, December 29, 2000
Oh, what a difference a day makes ! .......................From the worst day to the best day .........
AP, UPI Headline: Jenny Blows Them Away at Physical Therapy !
For the first time, the nurses unhooked the HeartMate from its powersource and hooked up the portable battery pack....... Jenny was put into a wheelchair and wheeled outside the door and down the hall.............. with a huge smile upon her face.......She truly didn't realize she could leave the room !!!! Jenny was ecstatic !!!
Every person she wheeled past in the halls toward the physical therapy room was the recipient of a huge smile , shining eyes and very hoarse "Hi" from Jenny ! She was truly excited to be mobile !!!
Jenny's first task was to walk holding onto the parallel bars - - a whole 10 feet !!! A chest strap was around her and held by the therapist just in case............
She got to the end of the walkway, unaided, and a discussion ensued........
The therapist asked, "Can I bring the wheelchair over to you?"
Jenny's reply, "No, I'll just skip back to it......"
Skipping aside, she did sense a crowd, and, showing off a bit, shuffled her feet the first few steps back to the chair.............(What a ham!)
The therapist then asked if Jenny wanted to walk with a rolling walker........ and sensing the challenge.........
Jenny accepted.......
She got out of the wheelchair, grabbed the walker and began moving - - - for a total of about 50 feet !!!
In total, she walked about 75 feet in the time she was in physical therapy !!!!
The therapists were amazed and Jenny was unaffected - - not tired, sweating or breathing heavily......
Jenny also made a friend today in Physical Therapy......
A guy named David has the exact same HeartMate product as Jenny has, and he has been at the hospital for 2 months.......The reason he has been at the hospital for that amount of time is that he spent 5 weeks on the ventilator.. (Jenny spent 2 weeks)
David said he switches himself from the powersource to the battery hookups for the HeartMate....
He got out of the wheelchair, got on a machine called the NewStep and started working out at a furious pace.......
Jenny was smiling from ear to ear; David's progress gave her so much hope !!!!!
Jenny asked David, "Does the HeartMate hurt?"
He replied, "It burns a little bit around the driveline, but it doesn't last, it gets better over time......"
Jenny returned to the room and slept soundly...................
Last night was a real good night also - restful, peaceful ......
Jenny's progress continues to shock !!!!
AT 5 pm, tonight, Jenny's friend's dad (Dr.Leoni) has scheduled a procedure to view her voicebox via a tube that goes through the nose and into the throat...... The purpose is to determine why Jenny's not speaking a little louder.........If it's due to her diagnosis of Multiple Sclerosis (MS), her MS doctor will prescribe steroids for about 3 days ......... more to come......
A nurse update........
The head nurse of the floor visited Chris to discuss "all of your concerns"...... A pleasant discussion ensued, and, as a result, Jenny really likes the nurses who have been assigned......... - - they've had great conversations, Jenny's received wonderful care and they've all fast....... become friends........(Thanks Barb!)
Nurse Rita especially makes Jenny feel comfortable ! So does nurse Jennifer.................
A few other notes......
Jenny's no longer in hospital "garb", but is wearing shorts and a t-shirt ....... she's much more comfortable !!!
On Tuesday, the cardiologists are performing an EEG on Jenny and will turn down the HeartMate a little,............. and see if Jenny's heart can make up the difference.......The point is to see if her heart has strengthened at all........
Expectations?
The doctor's don't believe the result will be positive, but they need to start measuring the results.......... (Please pray for positive results)
Another discussion took place on the expected amount of time Jenny would be in the hospital.........
The answer???
If everything proceeds as is, she could be home in 2-3 weeks, a month tops !!!!!!
Do you believe this??? Only 20 days ago, Dr. Allan said, "If we don't install the HeartMate immediately, she will not make it through this evening!" ......................... He was saying Jenny would not live.............And now......................, she may be home before the month of her birthday - - (Jenny's birthday is February 24...............I'm sure she's told all of you............In fact, dad was commenting the other day that Jenny's is the only known birthday that is celebrated for 1 week straight..........)
What a great day !!!!!! She's so worn out from the therapy and medicine, that visits are still not encouraged ........ Chris asked that no one visit until at least after the first week of the New Year.........Jenny agrees..........At that time, they'll re-address ..................
If you feel so moved, and haven't already done so, I'd encourage you to send Jenny a nice, encouraging note to:
Chris and Jenny Walker
8250 Windcombe Blvd.
Indianapolis, IN 46240
Also, I want to thank everyone for responding to help out with Ellie ........ I gave the information to Chris......
Jenny and Chris will decide how to best proceed........ Thank you so much for your kindness and concern !!
Chris said you could see the child-like joy Jenny had on her face today - - - for simply being able to leave her room in a wheelchair and then ......walk.......
Simple pleasures.................we should all have so much gratefulness and thankfulness to our Lord for all the wonderful gifts He so freely gives .................... and we so easily take for granted........
Do they have to be taken away from you to be appreciated today????
Consider:
"This is the day the LORD has made; let us rejoice and be glad in it." Psalm 118:24
Thursday, December 28, 2000
This afternoon, mom was taking a nap and the telephone rang .........
She got up to get the phone and a tired, "notch above whisper" voice said, "Hi Mom !"
It was Jenny calling .........
Mom couldn't believe it !!!! Mom so misses not talking to Jenny on the phone - - to the tune of about 3 times a day over the past few years !!!!
For 2 weeks they have not got to talk on the phone !!!! What a joy for mom to talk with her best friend on the phone again !
The message from Jenny?
It was short - - "Tell everyone not to come visit me tonight - - I'm tired - - and need to get my rest........."
And so the call ended............
The reason for the call? Read on........ It's not pretty ................
Last night was one of the worst nights of all - - Jenny was in such pain and couldn't get comfortable......She tried to get in every position possible .......without comfort........Jenny tried sitting in a regular chair, they even bought in a lazy-boy type chair and it was no help..... She did not sleep all night long .........She was just so miserable.......She had trouble with deep breaths......perhaps as a result of the fall out of bed last night......who knows??? But she's in such pain ...........
The nurses weren't familiar with Jenny's case since she was new to this area of the hospital, and they would not give her pain medication...... The best they would do was Childrens' Tylenol.....
A new nurse arrived at 5:30 AM, and without contacting any doctor, she gave Jenny the pain medication she needed - - Tylenol 3 with codeine....... Although Jenny doesn't like taking strong medication, after being up all night, she welcomed the relief ........Jenny was real fidgety and restless, so they also decided to put her back on the anti-anxiety medicine Xanex....
Jenny slept for a half hour or so and then woke Chris up by calling out his name - - Now, Chris was 4-5 feet away from Jenny's bed ! Her voice must now be a little louder than a whisper - - Praise God - -her voice is beginning to come back......
"This whole floor is driving me crazy" Chris said........... "I've asked so many questions and haven't got one answer...it's so frustrating....... you wouldn't believe how bad this is.......No one can help me with anything ! I hate this place...... No one knows which doctor is Jenny's, which medication she's on.......nothing. They don't even know if she's supposed to be receiving respiratory therapy....."
Chris demanded to speak to a doctor and said, "I'm not leaving until I can speak with a doctor or his assistant..."
Well,...................the "squeaky wheel gets the oil".......
Chris got to speak to a HeartMate specialist, and some of the surgeon's assistants.......
The HeartMate specialist said there's a guy in New York who has had the HeartMate for 5 years and has twice refused the option of receiving a heart transplant as he doesn't want to go through all that again.........His conclusion??
"Why mess with a good thing, I really like the HeartMate and its a part of my life and I don't want to change......"
The HeartMate specialist relaxed Jenny with his explanation of the pain and why it was happening...... He provided comfort in a difficult time.......He said to Jenny,
"If you make it a week or two tops, you're 'gonna be walking up and down these halls, acting perfectly normal, no problem...."
The doctor's assistant drew some pictures for Jenny as to what was happening with her swallowing problems.....Basically, if you don't swallow correctly, the food may end up in the lungs which will cause huge problems....... The assistant said there are over 50 muscles and/or "flaps" that have to work perfectly in order to swallow correctly...... and 1 or more of Jenny's throat muscles or flaps is not working perfectly.....yet.... If 1 flap doesn't close correctly, food will go in the wrong tube..........
Overall, the pain medication is necessary but it clouds Jenny's judgement...... She forgets to use the nurses call button when she needs them because she's so confused ........
Lest you think we are exaggerating about the quality of care....
Chris met with a lady whose husband was moved from the Cardiac Recovery area to this area 1 week ago..... We knew this lady fairly well - - - and she's one of the sweetest Christian ladies you've ever met........ Her conclusion?
"this area is terrible... My husband is being transferred to the hospital in Lafayette, and the staff at the Lafayette hospital heard how bad this area at St. Vincent's is without ever visiting there....... and they're right........."
It sure will take some time to get used to this new area...... The other area was so great - - and not by comparison - - we all said from day one that the care Jenny was receiving was outstanding and truly beyond belief....... Now, our tune has changed significantly......However, it will take time for the nurses to learn Jenny's situation - - which fills a binder at least 6 inches thick...
Chris concluded, "Jenny does not want or need visitors.......she's just miserable right now......She got all of a 1/2 hour of sleep last night.......and she's in the hospital to rest !!!!!! "
On a side note....... Chris' mother is returning to Kentucky and the new nanny for Ellie (Chris and Jenny's 7 month old baby) doesn't start until January 9........ We may need some help watching Ellie........ I don't know the times etc., but if you have any ideas, send them to my email address at timothy.j.doyle@us.arthurandersen.com
Wednesday, December 27, 2000
Last night, Jenny was moved to a new room - - and - - -
While on morphine, Jenny actually fell out of her bed !
Dad had the following conversation with her on that matter ......
"Did you fall out of bed last night?" ........... Jenny responded positively with a head shake......
"Did you get hurt?"............... A head shake "no".......
"Do you remember what happened"....................A verbal response of "No, not really........"
"Why did you think it happened?".............. Jenny smiled, and her eyes flashed when she responded,
"I was trying to escape........"
For whatever reason, the nurses in this "general area" of the hospital, do most of their testing at night........
.For example,....
at 2 AM this morning, it was necessary for Jenny to stand for 30 seconds on a scale so she could be weighed..........
The positive aspect is - - - she could stand up !!! - - while holding support bars !
This morning, Jenny sat in a chair for almost 2 hours ! ..................AND.................She was standing on her own for 10 full minutes !!!!
She even brushed her own teeth this morning !
This may not sound like a big deal, but it truly is - - - she is gaining strength by the hour - - and continues to amaze the nursing staff with her progress !!!
Since Jenny is out of the Critical Care area, the rules are becoming much less rigid ..........Last night, the nurses moved a fold-up bed into Jenny's new room and Chris spent the night there.........
Mind you, he didn't sleep much because of all the noise and the hourly interruption by nurses visiting Jenny.......But, - - what a considerate and kind act on Chris' part ! Jenny really appreciated it !
Jenny is sleeping this afternoon - - and may do so for some time - - because of the strenuous morning she's been through.....
When I arrived at 5:30PM, I stayed a total of 5 minutes, when it became very clear that she just wanted to rest.......
I said, "I'm going to leave now, OK?"
Jenny replied, "OK, I'm real tired..........but I think about all of the family all the time................."
So.....................here's a plea to all those wishing to visit Jenny right now - -
Given the constant, round the clock noise from the nurses station, and the fact that all the tests seem to be performed on Jenny during the night and early morning hours, it is imperative that she sleep and rest during the entire day ......
As a result, the family is asking to limit or eliminate visits at this point.......She just needs to rest and get stronger........and we all know Jenny (Ms. Entertainer.......)..... It's almost impossible for her to ask people to leave so she can rest !!!!! We believe this is in her best interest right now, even though she's always enjoyed the attention !
Overall, what an answer to prayer today's events have been !
Jenny's attitude and response to her situation has truly been incredible ! ................It reminds me of the following quote from a WWII general.....
"The enemy troops are in front of us, in our back, to the right and to the left - - We are totally surrounded !
This time, the enemy cannot escape !".....................................and Jenny maintains a similar attitude .....(despite attempts to escape from her own enemy - - - the evil hospital bed)
I appreciate the continued prayers for Jenny - - and.......with that in mind - consider this -
"Not allowing a person who has experienced a great loss to walk alone is the greatest act of love that heals."..........
Thank you for being there for Jenny ........ When you pray, she is definitely not alone.......
Tuesday, December 26, 2000
Happy 5th wedding anniversary to Chris and Jenny !!!!
Jenny received a beautiful gift of a diamond tennis bracelet from Chris ........Was she surprised !!!!
Jenny said Chris and her had a wonderful morning just talking with each other and reminiscing over the past 5 years ...... Jenny truly valued that time with her husband .....................
Yesterday, Jenny spent 10 minutes sitting up in a chair and out of bed - - - this is significant, as she had not been out of that bed for 20 days in a row !!!!! Jenny was in no pain and was comfortable as she sat in the chair !!!!! Praise God for this big step !
Jenny and Chris celebrated Christmas in the hospital yesterday .......... Funny how things work out ........ Jenny had ordered all of Chris' presents on the computer before she was admitted to the hospital on December 7, 2000 ....... The packages arrived when she was in the hospital, and she informed Chris to wrap his own presents for himself !!!! While Chris knew what store the presents were from, he didn't know the actual gift !
Chris received some real cool stuff from Jenny - - the "coolest" (in Chris' mind anyway) was a reversible "Ranger Boat" winter coat......
Chris loved it !!!!
Jenny just rolled her eyes, wondering, when, if ever, Chris would grow out of this phase ........(By his reaction to the gift, I'd say no time soon.......)
Jenny did a great job - - - once again !!!!!
Jenny received many gifts and she opened the first 3 gifts herself .......... It sufficed her to just watch the opening of the remaining gifts .........Jenny reacted most to the presents she received for Ellie - - the cutest little clothes you ever saw ! Jenny's friend Dallas bought Ellie her first pair of jeans - - pretty groovy !
When I told Jenny the gifts I received for Christmas, she just smiled...... I told her that, like last year, mom and dad gave us a check for a certain amount, in order to buy our own presents for ourselves, .................... Jenny held up four fingers, indicating her check was for 4x the amount of mine - - - and then started laughing ......... (They were actually the same amount, but Jenny couldn't resist having fun on my account !)
Jenny was a little frustrated with me because I just can't get close enough to hear what she's saying ..... She said to Chris, "Timmy needs to get his ears checked".....then she winked at me.. Today, with her voice a little bit louder and more understandable, I told her I could hear better - - and she asked - "which doctor did you go to ?" - - thinking the problem was mine ..........
I said, "huh".....and I quickly received "the look"..................
Last night, the nurses took the staples out of Jenny's incision which was pain free and performed very quickly....... The scar is long, but healing quite nicely !!!!
This morning, they took Jenny to perform some tests on her throat and swallowing.......Unfortunately, the tests did not go well as she is still too weak to swallow properly.........As a result, the feeding tube was reattached - - this is a tube that currently runs from the nose to the stomach .............but it needs to be moved so it ends up in the small intestine as opposed to the stomach........This is important in order to supply needed nutrition to Jenny's body in the most efficient manner possible.......However, it's not an easy process to do...........Three nurses tried to make this adjustment this afternoon............. without success...............and with much resulting pain to Jenny...............The nurses were all visibly affected by this process, one even broke down into tears, because they hated to put their new friend into so much pain............Plans are to take an x-ray tonight to see if the tube is properly placed......if not, they will try again tomorrow.........The nurse asked Jenny if that was ok, and without hesitation, she replied in a whisper, "Let the doctor try it tomorrow."
Jamie and I talked with her after the unsuccessful process and we told Jenny they gave her morphine for the pain........ Jenny's eyes got real big and she started to grab things out of the air.......Jamie and I looked at each other and said "what are you doing?"........Jenny replied, "I'm catching all the birds flying around......" then she started to crack up and laugh ................
I was reminded of another story........ When we told Jenny her neighbor at the hospital was a 60 yr. old man named Mr. Burns, who also had the HeartMate installed.......Jenny said, without hesitating, "Montgomery?"...........making reference to one of her favorite shows, - - The Simpsons - - and the old, rich man on the show named, of course, Montgomery Burns............ What a wit .............
Tonight, before 8:30 PM, Jenny is supposed to be moved to another room - - due to her continued improvement, she is being moved out of the critical area and into a more general area............... Another praise !!!!
After reading all this - - please consider the following..........
"Christian character does not get strong by a life of success."
Monday, December 25, 2000
Merry Christmas to everyone !!!!
Jenny was in excellent spirits today as she finally got to spend some time with her 2 favorite nieces - Erin and Katie (aka Kitzer .....)
Jenny was as polite as ever as she introduced all her guests to the nurses and she was so excited about Christmas ..... Despite not receiving the gift she was looking most forward to receiving - - a visit from her little baby Ellie......... Ellie had a cold today and therefore couldn't visit ......... Jenny understood and knew it was for the best that they wait until another time .....
These next words are from Jenny's 10 yr. old niece Katie - -
Jenny keeps a box of kleenex in her bed because its important for her to continue to clear her lungs by coughing up the excess in stuff in there............ After Jenny did this, she told a joke to Katie and Erin.....
Jenny said, "Do you know how do you get a kleneex to dance?"
She concluded ..........."you put a little boogie in it!"
(Don't quit your day job Jenny................)
When told she would have her own special Christmas when she moved to her new room, she replied.......
"Who's opening the next present...........Oh, Me, again???.............. Well, ok - bring it on......"
Jenny loves presents and attention !!!!!
Like I said, she was in great spirits today !
Jenny's absence from her first family Christmas in 30 yrs. was a reminder to us of what is really important........ We love Jenny so much and she was missed as much as we love her.........We thank God for hearing everyone's prayers and for the process of restoring Jenny's strength........... She's very weak right now, almost as weak as a newborn baby in a manger some 2,000 years ago.......
Sunday, December 24, 2000
Physical therapy and respiratory therapy seems to be the words for the upcoming weeks .... If Jenny's not doing one of these, she's resting, sleeping, watching videos.... and taking it easy .....I don't think Jenny is a big fan of all the therapy, but, of course, it's necessary..
The nurse said Jenny could see Ellie tomorrow for Christmas, and Jenny was very excited ! The best Christmas present ever !!!!
With less assistance from the nurse today than yesterday, Jenny sat on the side of the bed for 15 minutes........ Jenny doesn't realize how weak she is as a result of the operation and laying in bed for 2 weeks.......She has very limited use of her hands and she can move her legs up and down a little bit and squirm in the bed a tad - but thats about all the mobility she has until her strength returns........ Her wit, however, is back 100% .............
Jenny had about 8 visitors at 2:30 PM, including her favorite (and only) nieces - Erin and Katie - but she slept through the entire visit - - - the sitting up for 15 minutes really tired her out ........
We're hoping that in a few days, Jenny will be moved out of the Intensive Care Unit into a private room that's bigger and can better handle the family visits ....... This would be a big step for Baby John !
At the 4:30 visit, Jenny was up and asked if she could wear her new Christmas slippers and robe that Danny and Janet bought her ....... Jenny's always been a big fan of receiving presents, and, in that regard, I thought it might be nice for everyone reading this to send a "pick me up" card to Jenny at this address:
Chris and Jenny Walker
8250 Windcombe Blvd.
Indianapolis, IN 46240
I would like to take all the cards and put them up in her new room at the hospital.......... I know little Jenny would appreciate the kind thoughts.......but more important than the cards are your prayers, so please, continue to pray for Jenny !
Overall, another good day toward recovery........
To quote one of Jenny's favorite movies, A Christmas Story,
"Tonight, tonight, he comes tonight ........" (referring to Santa Claus)......
It will be difficult to have a Christmas without Jenny present, but, she's in our thoughts and prayers..... and we'll have a few Christmas parties at the hospital instead........................
Saturday, December 23, 2000
With assistance from the nurse this morning, Jenny sat on the bed for about 10 minutes today..... It really tired her out ......until Janet (aka J-Bird - Danny's wife) entered the picture......
Janet shared "all the latest Chicago gossip" with Jenny ......and Jenny ate it all up !.......
Jenny followed up Janet's updates with many questions, statements, and of course, smiles.........
She loved J-Bird's company .......BUT - Jenny was so tired that J-Bird could only hear about 30% of what Jenny was saying ........... Although, .................even Danny and I heard her talking about the good lookin' respiratory therapist !
The nurse's update was very positive and uplifting.......... Jenny's been progressing so well..............Despite that, all Jenny really wants to do is to come home - - - I wish Jenny could see our perspective, - the unbelievable progress she continues to make - - if she understood that, I'm sure she would be much more patient ............. However, patience and the Doyle's have never been confused for one another.......
Janet was feeding Jenny ice chips upon request.......However, Janet kept telling Jenny the chips were actually margarita's!.................It was a circular event - - the more Janet said she was feeding Jenny margaritas, the more margaritas Jenny requested ........ Judging by Jenny's facial reactions, they very well may have been margaritas.......
When we left from the 2:30 visit, Jenny requested we turn on the VCR tape so she could watch one of her favorite shows.......The Andy Griffith show ................ The tape includes many episodes, incuding one of her favorites - -
the one about the lady pharmacist named "Ellie Walker"............. which of course, is the name of her little 7 month old baby girl - - Ellie Walker!............This, of course, is no coincidence..............
Jamie asked me to include this one - -
a few days ago, when the surgeon visited Jenny in her room, Jenny, like the polite little lady she was raised to be, motioned her hand toward me, and mouthed to Dr. Allan, "Doctor, I would like you to meet my brother Timmy"......
He turned to me smiling, shook my hand, and said, "Hello Timmy..."
It was so sweet of Jenny to introduce me to the doctor I've spoken with 10 times face to face over the past 2 weeks.........
Friday, December 22, 2000
Almost everytime Jenny speaks now, we can understand her...... Well, except for mom and dad ...............
We still have to lean over and listen intently, but there's been a significant improvement from just yesterday. In fact, the nurses have been amazed at her overall progress ! It's just great to see the things Jenny is able to do from day to day.......
She told me that the physical therapy she participated in today was too much........
I mentioned this to the nurse and she said it was ok...just difficult for her ........(side note - working out and Jenny have never been synonymous terms.............)
This morning, Jenny was so tired of the feeding tube being in her nose, she just pulled it out.......
The nurse received the hint loud and clear and has decided to leave it out and try feeding her jello and other soft food orally........... No problems as of Friday afternoon !
The nurses let Jenny sit up and hang her legs over the side of the bed ! This had to feel good since she was complaining of back problems last night....
Jenny was talking with Chris this morning and he asked her if she's seen her scar - - and she said "yea, a little bit of it - - just call me cutter".........
Speaking of last night, a couple of things are very clear:
1. Jenny is extremely uncomfortable laying in the hospital bed. She continues to squirm in the bed to try and get /comfortable - but never to her liking....It's very, very difficult for her.......
2. Jenny wants to come home - NOW........ She's actually been trying to get out of bed !!!
3. Jenny is frustrated that no one can hear her speak, despite putting our ear closely to her mouth.
4. Overall, Jenny is extremely frustrated, impatient, bored and very, very emotional over this whole ordeal.... She seems most at ease when her mom is by her bedside.
Jenny was afraid and asked that Chris stay with her until she fell asleep last night.......Which, of course, he did ....
Apparently, Jenny receives respiratory therapy every 4 hours up until 10 PM each day and, word is, the respiratory therapist is a good looking guy...... The nurse told Chris that because Jenny just may have happen to mention it her ... a few times.....
One of the nurses has a daughter who teaches at Chatard High School, the alma mater of all 7 Doyle children..... Last week, during announcements, they said a prayer to the entire school for Jenny's recovery ! What a blessing that was to hear ! Thanks to all those who prayed !!!!
These words from the "Quotes" section of this website seem appropriate:
"It is really rather foolish to so often feel we have to say something brilliant and enlightening to someone who is suffering. Job (the bible character) makes it clear that simple companionship is what suffering people often crave - not a course in philosophy."
Jenny seems most at ease when we rub her feet, arms, hands, head and just let he know we're there and love her unconditionally (i.e. companionship) - - Jenny's more emotional when we try to update her on her condition and situation....(ie philosophy)
Thursday, December 21, 2000
Dateline: Indianapolis, Indiana 2:00 pm- -
Jenny has been taken off the ventilator !!!!!!!
Her first words????
In a whisper, which is all the louder she will be able to speak for probably about 2 days - -
"I want to get out of this bed and take a shower !"
( To hear Jenny speak, its necessary to lean over her and put your ear next to her mouth...... She just doesn't have the strength to speak audibly right now...)
When more folks arrived at 4:30 PM, she was in desperate need of a diet coke.....
The nurse couldn't do that but she was willing to give Jenny a few ice chips........
The more we chatted, the more the conversation turned to ice chips.... Jenny would continually say to Jamie and I ....
"Ice chips"....
I told Jenny, "I'll ask the nurse - when she's off the phone"
Jenny whispered to Jamie to tell me, "I'll time you...."
Jenny's words were a reference to when she was a little girl and all her older brothers and sisters always asked her to run upstairs and get them something......in the following manner - -
"Jenny, go get my shoes in my room - - I'll time you..."
Jenny would hurriedly take off upstairs ..............and we would go back to watching tv or playing - whatever.......
until we heard her rumbling down the stairs, ..then, of course, we would yell excitedly, "10, 11, 12 ......." as if we had been counting the whole time.......
She would then turn the corner, out of breath........ saying, "Did I make it????????"
.....Unfortunately, somehow, some way,,,,,, she never did make it...............
This only worked until Jenny was .................in high school.....then she caught onto our ploy ........
What a keen wit and perfect timing of Jenny to remember the "I'll time you" incidents ........
Jenny used her charms and wiles with both the doctor and the nurse to persuade them of her craving for more ice chips.........
Both the doctor and nurse said what our family rarely said to Jenny in all her 30 years, "NO".........
I'll let the ice chip saga go .............although this seemed to be the only important thing to Jenny today.......
We asked Jenny if she remembered biting the Respiratory Therapist's finger 2 days ago..........
Jenny had a gleam in her eye and a smile on her face when she said, "I told the Respiratory therapist to take her finger out of my mouth or I would bite it." Of course, Jenny had the respirator in, and she couldn't speak..........
Nonetheless, duly warned..........bite she did..........
(Click here to return to Jan 6, 2001 writeup)
Some more relevant info .........
When Jenny came off the respirator, after speaking her first words, she started trying to get out of bed, saying, "I've got to get home."
The doctor said, "you can bring Ellie in for a visit" and Jenny was very excited, but the doctor concluded, "there's risk of infection to Ellie" and Jenny then said, " I don't want her to come in then." Case closed (for now)....
More good news - -
Overall, everyone prayed for this day and the Lord provided.............
During this Christmas season, Jenny's situation has taught us that the most important things in life are intangible : faith, family, prayers, difficulties, trials, joys , hope and love - - we are forever indebted to the Lord for teaching us these lessons through Jenny's miracle ......
Thank you Baby John !
(Sorry for the late update J-Bird.....)
Wednesday, December 20, 2000
afternoon update - -
Jenny's physical therapy is going well and occupational therapy (OT) has been prescribed.... The reason for the OT is to see if we can get Jenny to write what she needs..... At one instance this afternoon, 4 people were around Jenny's bed trying to decode what she was attempting to tell us by means of pointing and mouthing words.......Sadly, we all failed the "game of charades"...Nurse Debby finally figured out she was having stomach discomfort, probably from the HeartMate and physical therapy....
Jenny's white blood cell count is very high and has been climbing over the week.........This usually means some kind of infection....... we're all thinking the pancreas is the source of the problem..................more to come .................
Here's a huge praise - --
The doctors changed the respirator "breaths per minute" setting from 12 to 6 this morning and Jenny lasted 2 1/2 hours at that level before her respiratory rate started to rise. At that time, the nurse asked, "Jenny, can you get a breath??? When Jenny shook her head no, the nurse set the "breaths per minute" setting back to 12...... This is a very good sign !
morning update - -
Last evening, on the way out, I said, "good-bye Jenny" and Jenny picked up her arm and waved good-bye ....... It was so sweet .......................Chris told me when he walked out, he asked Jenny, "can you say you love me?" and she clearly mouthed "I love you" back to Chris................Even sweeter !
Last night, however, was the best of all !!!!
Dad, mom and Chris visited Jenny, and Jenny was extremely sharp and aware. The nurse was walking around the room checking machines, doing her duties and talking to Chris about the HeartMate, Jenny's progress, the future etc.....
Jenny followed the nurse around the room with her eyes and you could tell she heard and understood the words, but not the context of the discussion.
As the nurse walked out out of the room, with Chris following, the nurse turned to Chris and said, "does Jenny understand what's going on - I mean fully understand?" Chris replied that he shared the basics with Jenny, but not the entire story..... Chris asked the nurse, "do you think its time to tell her everything that happened?" The nurse did .....................
Chris walked back into the room, and said, "Jenny, do you want to know what happened?"
Jenny shook her head yes and kept her eyes glued to Chris.....
Remember the past few days, when Jenny would listen to what you had to say for a few seconds and then turn her eyes away? Clearly, she was looking for this current discussion to take place, and no other topic was of any interest whatsoever...............
This time, her eyes were totally focused on Chris..................
"Jenny, are you scared?" .......................
Jenny responded with a firm "yes" head-shake.....
"Jenny, you've been in the hospital for 13 days."....................... Her brown eyes became as big and round as nickels........
"You collapsed at home 13 days ago and we had to immediately call an ambulance to take you to the Emergency Room at St. Vincents."...............Her eyes now as big as quarters...................
Chris proceeded to tell her the entire story about her heart troubles and the need for the HeartMate to pump the blood to her entire body. No mention was made of the possibility of a future heart transplant, as it didn't seem necessary to share at this time.....
Chris told her about the HeartMate, confirming Jenny's suspicion that something new, very weird and somewhat noisy was in the stomach area of her body. As Dallas said the other day, "that's why she keeps moving your hand to her stomach and giving a facial reaction that says, "please tell me what this is ...........and do it now !"
Chris asked, "Is it ok to still have the HeartMate in you when its time to go home?" ............Jenny shook her head yes
......... (and if she said "no"??.........)
"Do you want help with Ellie when its time to go home?" Again, Jenny shook her head yes......
This is great because Chris has lined up a 60 yr. old nanny, and friend of the family, and Dr. Cummings (Ellies current doctor) former nurse assistant to help out in any way needed at home.......for a long term period ...............perhaps for at least 1 year. (God does provide!)
After Chris finished the most difficult speech of his young life, he closed the discussion the same way he opened it...................
"Jenny, are you scared?"
This time, and for the first time in their "discussion", Jenny shook her head no............
Chris reminded her that the tube going into her mouth, the one she had been staring at in disbelief the past few days, was the next thing to go......... He said, "you need to be strong..."
................Jenny confirmed she would - - by giving Chris the thumbs up sign !
As he began to leave the room, (an hour past the 20 minute visit time period), he said, "Jenny, stop looking at me and go to sleep. I can't leave with you looking at me !"
.........For the second time, she shook her head no.............(ornery as ever !)
Jenny mouthed the words "I love you" to Chris as he left the room...............
Our family has never received such a wonderful Christmas present.............
Tuesday, December 19, 2000
Jenny had a good day today !!
The doctors again tried to take the respirator out - - and Jenny's respiratory rate again went up ......
the respiratory rate goes up because she begins to gasp for breath every time they turn the respiratory machine down.....
so, she's not just ready yet, but we're getting closer......
BUT, they turned the "machine generated" oxygen level down from 40% to 30%, which is the percentage oxygen the machine is providing to Jenny's body........and Jenny is making up the rest! So, yesterday and prior, Jenny Boo was providing 60% of the oxygen her body needed to survive and now she's providing 70% !! She's getting stronger and stronger every day !!!
The results from the ultrasound taken yesterday are back - the liver, kidneys and gall bladder look good.
The doctors did not get to see the pancreas; they believe there may be a slight infection in the pancreas that's causing her temperature to rise....... Nonetheless, she is on antibiotics, and has been for some days, to address their suspicion of pancreas issues......(Don't ask me what a pancreas does........)
One of her blood tests came back and the report seemed to indicate Jenny had mono sometime in the last few weeks..............and a "borderline size" spleen seemed to confirm these results. (Again, don't ask me how these 2 relate .....) But Jenny hasn't complained at all the past few weeks about a sore throat or any problems to support the mono prognosis.....The doctors plan to test the blood again to reconfirm their results.....
Overall, Jenny's temperature has stayed steady throughout the past few days (98 - 99 degrees), which means the antibiotics are effective in addressing possible infections.
Today, mom, dad, Chris and I visited Jenny at 2:30 pm. The propofol level was at 6, and Jenny was wide awake. It's truly amazing to watch mom and Jenny communicate; they're best friends and have been for years !!! Jenny kept trying to speak to mom by mouthing words no one could interpret........ It didn't matter - - mom just kept on talking and praising Jenny for how well she was progressing.......Jenny picked up her right hand, moved it across her body so mom could hold both of her hands....... It was precious.....
I talked to Jenny and, when prompted, she started doing her "Planet of the Apes" nose crunches we always did as kids........ Jenny is so clever, witty and funny - - she never misses a beat !
Chris said one of the nurses saw the Christmas picture of Ellie (Jenny and Chris' 7 month old daughter) wearing a Santa hat and beaming from ear to ear...... The nurse told Jenny, "she's sooo cute" .........and Jenny did her own "ear to ear" beaming!!!......
When mom and dad were getting ready to leave, each of them kissed their 2 fingers and touched Jenny's forehead... When they touched her forehead, Jenny closed her eyes, savoring the moment, so as never to forget the comfort those kisses provided......It bought back memories of when Jenny was a little baby .................
Think about these words ...................
Jesus said , "Come to me, all you who are weary and burdened, and I will give you rest.".....
"The questions that truly matter in life are remarkably few, and they are all answered by these words, "Come to me".
Our Lord's words are not, "do this or do that".........but....... come to me.....
Look at the stubbornness of our hearts ! We would rather do anything than this one simple childlike thing !!!!" Oswald Chambers
And yet, "Come to me" is the only action that will provide a true rest from each and every burden we carry !!
I pray that those of you who have had enough, and are tired of all the problems, worries, burdens and hassles of life, come to Jesus and find rest in the midst of your situations...... I also ask that you pray the same for Jenny...........
Monday, December 18, 2000
The HeartMate booklet is now on-line ! Click here to check out the HeartMate booklet !
The doctors decided not to take the ventilator out today and may try again at the end of the week or early next week. Jenny just doesn't seem to be ready to make the transition.....
Although the propofol (sedation) medicine was at 10 today at 2:30 pm, Jenny was wide awake. Yesterday, the sedation medicine was lower (it was at 6; the higher the number, the more the sedation) and she was more tired........ This could be due to a number of things but it's very clear that Jenny is getting stronger every day!!!!
Last night, Jenny watched The Sound of Music on TV, and then, fell asleep .....(she always liked that movie.....)
Last night, the nurses also took a feeding tube from her nose and switched it to her wrists, but switched back again today after the change caused Jenny to retain liquids....
I believe Jenny is very aware of who is visiting her now - - and she'll listen to what you have to say - - for a few seconds - - and then she turns her eyes away......
Jenny seems depressed and unhappy, which is totally expected at this phase....... She seems more frustrated then anxious, which, as difficult as that is to see, is progress......
Even showing her 7 month old baby Ellie's picture results in a similar response from Jenny.....she focuses on the picture - then, turns her eyes away ......
We've become friends with Mrs. Burns, whose husband also recently received a HeartMate.... He had not responded for days until his boyhood friend from his hometown showed up today.... The friend was telling Mr. Burns about when they were younger, in high school, and loaded up the convertible with snowballs, put the top down and went through the neighborhood heaving snowballs at innocent victims. Mr. Burns was smiling and laughing as a result ! It gave Mrs. Burns the much needed comfort we received just 2 days ago with a similar response from Jenny on Saturday.........A great praise for the Burns family !
Consider this............"When friends ask, there is no tomorrow."
So, as friends of Jenny and the family, I am asking to please make it part of your daily ritual to pray for Jenny and her response to her overwhelming situation........
She's really down now and needs our prayers to the Lord to lift her up ......
Prayers like this verse .....
.....but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. Isaiah 40:31
Sunday, December 17, 2000
The HeartMate booklet is now on-line ! Click here to check out the HeartMate booklet !
The streets in Indy today are ice and snow covered due to a late night, early morning storm that rolled through the city. Chris and his 4 wheel drive vehicle is the only one who will probably make it to the hospital today!
Jenny is real tired this morning as they lowered her sedation (propofol level is at 6).
Jenny's temperature is continuing to drop down to normal, and there is no fever, which is a good sign.
Her best friend Dallas visited Jenny last night and Dallas said when Jenny pulls her hand away from someone, she's actually trying to pull your hand to her stomach..... In fact, she did this to Dallas many times last night......Very near her stomach, inside of her body, sits the "engine" of the Heart-Mate product, a 2 inch thick, 4 inch in diameter flattened titanium cylinder...... Inside her body !!!!! Dallas believes that Jenny is pulling our hand to her stomach and asking via facial reactions, "what is this?" She has a frightened look on her face when she does this. She's obviously very aware that something different is there putting pressure on her body.......Dallas asked, "do you want to talk to your dad now", and Jenny shook her head "no" and held on to Dallas tightly. It was clear to Dallas that Jenny wanted answers to what was going on, and the family was being more supportive and not talking about the situation....Dallas responded to her and said, "I promise you, we won't let them do anything to you that's not necessary and..... we'll tell you everything that's going on after they take that tube out of your mouth." Jenny squeezed Dallas' hand, as if to say, "ok, I'll wait if I have to, but I want some answers soon......."
Overall, the nurses are continuing to lower the sedation medicine (propofol) so that Jenny can begin to adjust to her situation consciously. Of course, this will probably result in more pain but the doctors and nurses feel it's time to move to the next step......
which includes ..........
trying to take Jenny off the respirator tomorrow. The doctors and nurses want to wait until tomorrow when the roads clear, so, if there are complications, the doctors can make it to the hospital in a timely manner.....
Please pray today for a successful day and that "the third times a charm" for taking Jenny off the respirator tomorrow.
Please think about this following statement ........
"Whatever brings you to your knees in weakness carries the greatest potential for your personal success and spiritual victory." Charles Stanley
Thank you for your thoughts, prayers and concerns for my baby sister Jenny.....
Saturday, December 16, 2000
Last night, dad had a very strong feeling we were going to have some good news and he felt we would receive it today
......and sure enough, today, we received it !
The propofol level was turned down to 6 and Jenny had a 99 temperature when we visited this afternoon. She was awake and very aware !
When mom was with her holding her hand she mouthed "hi mom" and tried to talk to her over and over....Of course, since the respirator is in, she can't speak yet..... Mom and Jenny talk several times a day - - - for many years now - - - and are the best of friends.....So, I'm sure Jenny had alot to say - - but mom did too and Jenny listened intently.........
When I was holding her hand, her whole face changed as she tried to say loudly, "TIMMY!" only the way she can do it......Of course, there was no sound only a beautiful facial reaction! When Jenny was very young, we used to play "Planet of the Apes" and we would scrunch up our nose over and over like the apes did on the show. She did that when I was holding her hand and when I said are you doing "Planet of the Apes"? she squeezed my hand and motioned yes....... So, of course, we did that back and forth for awhile and she was giggling and laughing...
When dad said to Jenny, "you have the best tan in this whole unit", she started laughing and smiling !!.....When he said. "the telephone doesn't ring half as much as it used to you", she just smiled wide .......
She tried to talk to Chris also, and when Chris said, "Honey, I can't understand what you're saying, so I guess you're just saying you love me." She started laughing about that also.
We asked a few times, "squeeze our hands if you're in pain" and being fully aware, she didn't squeeze our hands.. The nurse said they're working on the right medications and dosages, and today, they added Xanex to the mix.
Her baby Ellie's 8 1/2/x 11 picture is on the wall across the room and it appeared she was looking at it... When I asked, "squeeze my hand if you can see Ellie's picture over there", she gave me a tight hand squeeze.
A minute later, we left the room and Chris was talking to Jenny alone. Dad went and stood by the door, about 15 feet away, and Jenny always aware of everything going on around her, turned her head and looked at dad !
This was such a great visit for all of us and is an answer to many, many prayers ! We thank God for this wonderful visit and for his answer to our prayers... This should be evidence enough that your prayers are powerful, so please, continue to pray for Jenny and her progress....... and please do it now !
Friday, December 15, 2000
Last night, Jenny started to get a temperature.....at 8:30 pm, her temperature was 103.5, at 11:30 pm it was 101.8 and at 10:30 am this morning, her temperature was 98.7..... Her temperature has remained there for the remainder of the day and evening.......Last night, they had the room very, very cold to help bring her temperature down. The issue is obviously, "what caused the temperature?" Normally, the cause is some kind of infection caused by the tubes that are in her body or with the Heart-Mate product itself......The doctors do not believe there is any infection with the Heart-Mate product....As a result, they bought out the major antibiotics to attack any infection. Three different bodily fluids were tested for infection, 2 came back no problem at all, and the third is blood, which takes a day to analyze. Of course, it's very possible there is no infection and this is just a result of her body adjusting.....We may never know.....Bottom line, her temperature is almost ok now ! The "propofol" setting was at 12, and she was barely, barely conscious...... She could barely keep her eyes open but because she heard some noise in the room, she wanted to know what was going on.......Sounds just like her mom and her baby Ellie.....
Her body needed to rest ......This is a minor setback; however, setbacks are expected........
A 40 yr. old recipient of a Heart-Mate stopped in for a checkup at noon today. This person received his Heart-Mate 9 months ago. No one from our family was there to meet him, but a member of another family shared the news with us..... The 40 yr. old man is leading a very normal life as he lifts weights, walks a mile a day, and spends time playing with his children. I assume he also works...... He told this family that he is a little self conscious about the Heart-Mate in movie theatres, libraries and other quiet places because it does make a "swishing" noise. He has difficulty bending over and picking things off the floor because the Heart- Mate is not a flexible piece of equipment, Other than that, he is looking forward to a heart transplant in March 2001. It's taking awhile for his heart to come in because he is a very standard "O" blood type. (Jenny is a "B" blood type, which should mean a quicker response). The real encouraging news with this man's story is that he was in the hospital for only 4 weeks before he was sent home..... However, this is not normal and it usually takes somewhat more time; which no doctor is willing to estimate at this time for Jenny's case.
Overall, Jenny looked so good - - her color is excellent, her progress is excellent and we are so proud of her...... I'm still certain she doesn't know what's totally going on, but she gets better day by day and soon she will be speaking with us, Lord willing !
Our next steps are to determine the cause of her temperature and to take the respirator out when Jenny Boo's ready.... We hope and pray it is very soon so she can converse with us !
Chris received some news on the Avonex medicine written about on Monday, December 11, 2000 below..... Research showed there has not been any documented cases of cardio myopathy (Jenny's diagnosis) resulting from the Avonex medicine. If so, we're not sure why the most recent newsletter said cardio myopathy could result from taking Avonex.... More to come ......
Please think about this following statement ........
"When sorrow comes, we have no right to ask "Why did this happen to me?" unless we ask the same question every time joy comes our way."
Are you celebrating all the joys that the Lord has given you on daily basis?
Remember, even every breath is a gift !
Please continue to pray for Jenny - - her strength, her comfort, peace, understanding, progress and for a miraculous healing !!!
Thank you so much...
Thursday, December 14, 2000
afternoon - 2 days ago when we visited, the "propofol" setting was at 30. This is the medicine that knocks Jenny out.....When we arrived at 2:30,the nurses had it set at 1. The result was Jenny was awake and could respond by hand squeeze and shaking her head. She still can't speak because the respirator is in...... When mom said, "Hi angel, it's mom", Jenny mouthed back the words "Hi mom".... It was a great sign.... Chris, mom and I were astonished!!!!! However, when Chris asked, "squeeze my hand if you're in pain", she squeezed his hand tightly..... Chris asked the nurses to ask that question to Jenny often and help her with the medication if she needs it.........
She can be emotional to certain things we say, as is evidenced by her facial reaction. So, things are kept very positive - - as would be expected.......It's amazing how well she's doing even after a few days! (Danny - - half of those machines that were monitoring Jenny are no longer in use, and there's also a lot less cables and machines in the room! So, I can't give you alot of numbers to benchmark against.)
Today, I got to spend the afternoon with Jenny, and I talked and shared stories.... A few times, while holding her hand, she would seemingly pull her hand away based on what I was saying. Chris said "what she's trying to do is pull your hand into her"!!!!! That's also good news! At about 3:15, the nurse turned the propofol level up to 10, so she was in and out of consciousness. The physical therapist, Noreen, was in to do some passive exercises with Jenny. Like all the nurses, Noreen only has very positive things to say about Jenny's progress.
morning - The doctors tried to remove the respirator again this morning without success. They assured us this was not a setback but given how well she's doing, it was worth another try.....
Wednesday, December 13, 2000
afternoon - Dr. Allan, the surgeon who installed the Heart-Mate, visited today and was very pleased with how the Heart-Mate was operating and said there were no complications...... Jenny was taken off the sedation and is on pain medication. Also, she is breathing over the respirator, which is good news, but, they are not ready to remove the respirator, only turn it down some... Bottom line, Jenny's awake after 6 + days of being sedated!!!!.... Chris got to spend about 3 hours with Jenny this afternoon, and although she couldn't speak because of the respirator tube, she was awake and could motion, shake her head and respond...........Chris showed her a picture of her baby Ellie and a little later she motioned to see it again.... Jenny still doesn't know the extent of what has happened....... This is the beginning of the tough part, when Jenny is awake and can react to her situation. We need everyone who is reading this to stop and pray now for Jenny's comfort, peace, understanding and acceptance of her situation. This is another beginning to a long road - - - - and prayer is the only answer !
morning - Indianapolis is in the process of receiving a forecasted 4 - 8 inches of snow, making it difficult to make it to the hospital to see Jenny. This morning, the infectious disease doctor visited Jenny and said there were no problems in that area. Another praise ! No other changes but things are going as planned and Jenny is doing well and on schedule. At this point, no one will say what "schedule" means long term, but we expect a few weeks in the critical care area and possibly a few months in the non-critical care area. We are praying for Jenny to be up and aware at Christmas so we can all celebrate Christ's birth with her at the hospital. I'm certain this would be a Christmas we would never forget and that we would receive a gift that we could never replace - Jenny Boo....... Its' the only present we all truly want ! Today is Debby's birthday too - - Happy 29th Debby!
The nurses are weaning Jenny off the respirator by turning it down bit by bit. She has reacted positively to this approach - good job John Babes! Yesterday, totally turning off the respirator was premature. Jamie says Jenny looks really good today !
Tuesday, December 12, 2000
10:30am - Because of Jenny's progress, the nurses turned off the respirator to see if Jenny could breath on her own. 10 seconds later, Jenny struggled, so the respirator was turned back on. This was not considered a setback since Jenny's progress is right on schedule. Jenny will be heavily sedated the rest of the day and the nurses will focus on recovery from the surgery..... Jenny looks so beautiful and I'm so proud of her progress.....God was and is in control of this process from the beginning and we continue to pray for a full recovery and a miracle healing.....
Monday, December 11, 2000
8:30 am - Jenny recognized her husband Chris and smiled at him and squeezed his hand. Immediately, she fell back asleep ....
10:30 am - Dad walked into the hospital room and said "Hi Jenny Boo" and she opened her eyes and smiled. ! She went back to sleep until dad told her a few stories about Ellie and then she smiled again (with eyes closed). When he took his hand back, she grabbed for it again! The nurses are saying her progress is "astounding" ! Praise God !
6:00 PM - Chris received a newsletter in the mail today with an insert on the side effects of Avonex, the shots Jenny takes for Multiple Sclerosis. Jenny had not taken Avonex for 1 year because of the birth of Ellie but last week took one shot of Avonex to start up the process once again. The next week, she was in the hospital.... One of the items listed on the Avonex side effects paper was cardio myopathy, which is Jenny's current condition. The paper stated that this condition could occur even when there was no history of heart problems in the patient. Jenny has never had heart problems in the past and the doctor believes the condition now may be "post partum" (aka "after birth") cardio myopathy - or as a result of the birth of Ellie. The problem with that diagnosis is that the birth was 7 months ago! The doctor will receive the Avonex news tomorrow. But..... it's too early to tell the cause and although knowing the cause is critical, right now, we are just praying for progress and continued positive reports for Jenny.....We don't care about any other issues than this one - - we love Jenny and pray for her recovery.....
Sunday, December 10, 2000
Jenny looks so beautiful today - her swelling in her face, lips and neck area was way down, and the nurses, who are all just crazy about Jenny, washed her hair, put lotion on and gave her a massage ! She was moving her legs when we were in the room and Chris told her "not to show-off"... Of course, she is still heavily sedated and not able to consciously respond to anyone, but we know she hears us ! She is doing wonderfully and the nurses turned down the oxygen a little bit..... Her heart rate is around 150 and should be about 120, but Dr. Allan is not concerned.
Tonight at 6 PM, around 200 people from St. Pius parish attended a prayer service for Jenny. It went about 1 hour and was hosted by Jenny's classmates and friends from St. Pius. There was plenty of faces we had not seen in awhile! Everyone promised their prayers and was very sympathetic to the situation. It was a very nice time and much appreciated by the family.
Click here for the Prayer Service handout.
Afterwards, we went to the Ismail's (My sister Jamie and her husband Ahmed) "Cafe Ammo" for dinner and a wonderful time of discussion and reflection on Jenny's life.... Jenny has been a very, very frequent visitor to "Cafe Ammo" and recommended it highly in the past ! (Jamie would add one more very to that last sentence)
Saturday, December 9, 2000
Jenny began the first day of the rest of her life with her "new heart contraption" inside of her. No complications ! What a praise ! We wondered aloud what a shock it would be when Jenny found out ! For now, we just prayed for no complications. We learned on Friday that the Heart-Mate was phase 1 of a 2 phase project.....Phase 2 was the need for a donor heart to replace the Heart-Mate. Yesterday, prayers were sent throughout the USA for the Lord to begin the process of making a heart available for Jenny. We understood that her name would not even be added to a heart transplant list for a few more weeks, provided no Heart-Mate complications - but we know the sovereign God of the universe was already in the process of fulfilling our hopes. Of course, our hope means some other family's loss, but again, God is sovereign over all life as the Bible clearly states:
The heart of man is a gift from God and He decides, in His sovereignty, who will receive His gift.
Friday, December 8, 2000
9:30 am - This was an extremely critical time as it appeared her organs were shutting down but Jenny continued to fight and the Lord was constantly by her side.
At 11:30 am, Jenny is in the Intensive Care Unit and when I walked in the room, I couldn't believe all the equipment in the room and the hoses and cables they had in her nose, mouth, arms, finger and many more going under the covers! When I asked, "what's happening here" the nurse sadly replied she didn't really know; concluding, "Jenny is very very sick." A number of tests were run all day to determine the problem, and finally, at about 4:30 PM, Dr. Peters and a hospital chaplain held a family meeting. Dr. Peters said the problem was that her left heart was only pumping at 10% and he was handing Jenny's case over to a Dr. Allan. Later, Dr. Allan came in the room with his nurses and gave us the facts of Jenny's situation. He said, "If we don't install the Heart-Mate immediately, she will not make it through this evening!" We were all stunned and couldn't speak, but dad spoke up and said, "we really have no option." With that, Jenny was prepared to go to surgery. Each family member got to say a few words to Jenny (who was under heavy sedation) before she was taken away and it was by far the saddest, most difficult moment every member had ever had in their lives. Chris signed some papers in a daze and had no idea what they really said...........We had much hope that we would see Jenny alive later that night.
At 5:30 PM, the family waited for the 4 - 8 hour operation !
At 9:30 PM, the nurses came to the waiting room, and through their actions and expression it was very clear that the operation was a success...... Their words confirmed as such .......
Dr. Allan later confirmed the news but, as was his style, he warned us that news could change immediately with Heart-Mate operations. In fact, he said, "50% of these operations result in some kind of complication, so prepare for them!" He also said, "I could go back to the room now and the results could be 100% different!"
As it was the saddest point of everyone's life 4 hours earlier, now, it was the most joyful - albeit a "very cautious joy"...
We all got a chance to see Jenny at about 10:30 PM and she looked incredibly peaceful, beautiful and very swollen ! There were no complications yet and I prayed for the Lord to watch over my baby sister that night. A 24 hour nurse joined the Lord in the longest night of our lives .........
Reflecting on the operation, it was very clear to me that we experienced a miracle. Most of that night I praised God for His gift - - Jenny, my baby sister, (aka "Baby John Babes") was given another day of life!!
Thursday, December 7, 2000
Jenny was taken to the Emergency Room at St. Vincent's hospital in Indianapolis, Indiana on Thursday morning. She collapsed at her home after being very sick and throwing up - - so Chris, her husband, called an ambulance. All day, no one could tell what Jenny's issue was, but the news kept coming back worse and worse. She was getting sicker and sicker as they tested for migraines, pancreas and kidney problems, stomach problems, viruses, diabetes and other problems. Fluids and morphine were given to Jenny through a tube and they may have somehow filled up her lungs. Apparently, when they attempted to put an oxygen tube or mask on Jenny, she kept pulling it away, probably because she couldn't breathe and wanted to keep all obstructions away from her mouth. They had to tie her arms down so she wouldn't get in the way ! Jenny was very afraid..............
Finally, a doctor put her on a respirator and while in the Emergency Room, she had a heart attack. It became clear that in addition to all the problems she was having, the heart appeared to top the list, but still, no one knew what was happening.........Perhaps the other problems were a result of the heart problem ........
Jenny's life hung by a thread all night long as the doctors diagnosed her condition.
The family couldn't believe what was happening - - "she just came into the hospital because she was very sick, what's going on here?" was the general question.
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